Long COVID three years on, somewhat better with a drug combination and methylene blue
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 3 years
- Last post
- Feb 2024
In their words
- Condition: Long COVID
I'm in year 3 of long covid.
In context ↗ - At worst: Mild
for about three out of every four cycles, I feel like the symptoms are very muted. They are still there in the background but I can function. However, I still have that one cycle where I'm pretty much worthless.
In context ↗ - Now: Somewhat better
I am not. My cycle of symptoms has changed from a monthly cycle to a 10 day cycle and, in working with a long covid specialist, many of my symptoms are "controlled" via medicine.
In context ↗ - Began after: COVID
OG Covid 12/2020, long Covid 3/2021-present
In context ↗
Read from 6 of their posts and comments; links to the 4 this page draws on
Summary
Plover 54754 developed long COVID in March 2021 after a COVID-19 infection in December 2020. Three years on they were still ill, but a combination of gabapentin, venlafaxine and zonisamide from a long COVID specialist muted their symptoms for about three out of every four 10-day cycles, leaving one cycle where they were 'pretty much worthless'. Methylene blue helped their crash phase and eased optical migraines. They were not recovered.
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What they tried
What they credit
Also tried
Their words about each treatment
- Methylene Blue · Helped
It helped my "crash" phase a lot, especially with short circuiting the horrible optical migraines. I take 1ml in an extended release capsule, 1-3 times a day
In context ↗ - Gabapentin · Helped
My current combination is Gabapentin 300mg at night and in the morning, Venlafaxine ER 75mg at night, and Zonisamide 100mg at night. ... This combination of medicines has controlled the symptoms enough
In context ↗ - Venlafaxine ER · Helped
Venlafaxine ER 75mg at night ... The current medicines that have helped, but not eliminated it, are venlafaxine and zonasimide.
- Zonisamide · Helped
Zonisamide 100mg at night ... The current medicines that have helped, but not eliminated it, are venlafaxine and zonasimide.
- Pseudoephedrine · Not said
If I'm experiencing the pressure you describe really badly, I'll add in Pseudoephedrine 60mg in the morning.
In context ↗
Approaches: SNRIs · Other drugs and medicines
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2.7 years after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| March 2021 | Long COVID began after COVID-19 in December 2020OG Covid 12/2020, long Covid 3/2021-presentIn context ↗ | Not stated | |
| 2023-10-08 | methylene blue shortened the crash phase and eased optical migrainesIt helped my "crash" phase a lot, especially with short circuiting the horrible optical migraines.In context ↗ | Not stated | Methylene blue |
| 2023-11-30 | specialist medicine combination muted symptoms in most cycles, could functionThis combination of medicines has controlled the symptoms enough that for about three out of every four cycles, I feel like the symptoms are very muted. ... I can function.In context ↗ | Mild | |
| 2023-12-31 | symptoms controlled by medicine but illness not overmany of my symptoms are "controlled" via medicine. But, I'm so ready for this to be over with.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Brain fog
trying to remember some word or to get my fingers to actually type what I was trying to get them to type
In context ↗ - Headaches & migraine
the horrible optical migraines ... If I'm experiencing the pressure you describe really badly
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