Severe ME/CFS, now somewhat better after cutting sulfur and taking molybdenum
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Jul 2017
In their words
- Condition: ME/CFS
nope, just ME/CFS
In context ↗ - At worst: Severe
Life stressors and full time work got me to severe.
In context ↗ - Now: Somewhat better
I do feel better after lowering sulfur intake. ... the 30% I'm currently at
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
Horizon 65006 had ME/CFS that was mild while they were a full-time student; walking and jogging pushed them to moderate and life stressors and full-time work to severe. In 2017 they reported being at about 30% on CFS energy index scales and could crash from under five minutes of gentle supine yoga. They felt better after cutting sulfur intake and taking molybdenum, and took 120 mg of CoQ10 for chest pain, fatigue and air hunger.
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What they tried
What they credit
Also tried
Their words about each treatment
- lowering sulfur intake · Helped
My improvement wasn't as big as yours, but I do feel better after lowering sulfur intake.
In context ↗ - molybdenum supplementation · Helped
Molybdenum supports this enzyme, and molybdenum supplementation has also helped me.
In context ↗ - light weights and supine Pilates · Not said
I did okay with light weights (8 lbs. max) and supine Pilates.
In context ↗ - walking and jogging · Worse
eventually walked and jogged my perfectionist self into moderate ME
In context ↗ - slowly increasing activity, including gentle supine yoga · Worse
I've been told to slowly increase activity per the usual dysautonomia recommendations but haven't had much luck ... I once crashed from < 5 min gentle supine yoga
In context ↗ - CoQ10 · Helped
I started taking CoQ10 when doctors suspected mitochondrial disease (nope, just ME/CFS) and find it very helpful.
In context ↗ - Meditation, yoga, breathwork · Worse
I once crashed from < 5 min gentle supine yoga.
In context ↗
Approaches: Diet · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | mild ME while a full-time studentWhen my ME was still mild (i.e. I was a full time student with a social life, though not much else besides lots of downtime)In context ↗ | Mild |
| — | worsened to moderate ME after walking and joggingeventually walked and jogged my perfectionist self into moderate MEIn context ↗ | Moderate |
| — | life stressors and full-time work pushed them to severe MELife stressors and full time work got me to severe.In context ↗ | Severe |
| 2017-04-27 | crashed after under 5 minutes of gentle supine yogaNo lie, I once crashed from < 5 min gentle supine yoga.In context ↗ | Moderate |
| 2017-04-27 | about 30% of normal function, tolerating exercise only when functioning betterMaybe 60-70% versus the 30% I'm currently at.In context ↗ | Moderate |
Adverse events
- Meditation, yoga, breathwork“I once crashed from < 5 min gentle supine yoga.” In context ↗ Made symptoms worse
- CoQ10 / ubiquinol“I used to take 120 mg. at night too but found that too activating before bedtime.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I once crashed from < 5 min gentle supine yoga.
In context ↗ - POTS & dysautonomia
please avoid it if you've got autonomic problems/OI. I definitely should have.
In context ↗ - Heart symptoms & palpitations
to reduce chest pain, fatigue, and air hunger
In context ↗
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