Bedridden most days with ME/CFS, somewhat better with Abilify and moving somewhere wetter
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Jul 2022
In their words
- Condition: ME/CFS
I think a lot of people with ME deal with insomnia, I sure do.
In context ↗ - At worst: Severe
though I'm still bed ridden a majority of my days I've been able to participate in limited activities
In context ↗ - Now: Somewhat better
The only thing that has truly helped me is moving somewhere with good air quality and taking Abilify like Whitney Dafoe
In context ↗
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
A person with ME/CFS tried to get at least 10 hours of sleep without feeling rested, felt panic and a racing heart after caffeine, and could not tolerate heat. They are still bedridden most days, but Abilify helped them fall asleep faster and take part in limited activities. They also credited moving somewhere with wetter weather, trees and better air quality as truly helping.
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What they tried
Also tried
Their words about each treatment
- Caffeine / coffee · Worse
Caffeine really hurts me and my condition a lot
In context ↗ - Abilify · Helped
It's helped me get to sleep faster and wake up at a good time feeling more refreshed. It's called Abilify and though I'm still bed ridden a majority of my days I've been able to participate in limited activities which has been life changing.
In context ↗ - moving somewhere with good air quality · Helped
Anywhere with wetter weather, near lots of trees... it's what has helped me at least. The heat and the dry is super bad for me I found out
In context ↗
Approaches: Mould avoidance · Other drugs and medicines
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | bedridden most of the day before Abilifythough I'm still bed ridden a majority of my days I've been able to participate in limited activitiesIn context ↗ | Severe | |
| 2022-06-07 | Abilify improved sleep and allowed limited activitiesIt's helped me get to sleep faster and wake up at a good time feeling more refreshed ... I've been able to participate in limited activitiesIn context ↗ | Severe | Low-dose Abilify / aripiprazole |
| 2022-07-05 | moved to a wetter place with trees and good air qualityThe only thing that has truly helped me is moving somewhere with good air quality and taking Abilify like Whitney DafoeIn context ↗ | Severe | Relocation and environmental change |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
I think a lot of people with ME deal with insomnia, I sure do.
In context ↗ - Heart symptoms & palpitations
makes my heart race too fast
In context ↗ - Temperature regulation
The heat and the dry is super bad for me I found out
In context ↗
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