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Long COVID Moderate → somewhat betterIll 20 months before improving or writing

Long COVID with pleurisy and migraines, somewhat better with antidepressants

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
20 months
Last post
Sep 2023
In their words
  • Condition: Long COVIDI’m starting to feel long covid symptoms again specifically pleurisy In context ↗
  • At worst: ModerateI wasn’t able to do basic things like drive a car. In context ↗
  • Now: Somewhat bettersince then, my back has gone back to normal In context ↗
  • Began after: COVIDI had just recovered from my 6th month journey and got covid again In context ↗
  • Says they never had: Anxiety & low moodthey keep prescribing me anti depressants even though I’m not really depressed
Read from 8 of their posts and comments; links to the 7 this page draws on

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Summary

A user was ill with long COVID for about six months before July 2022, recovered, then caught COVID again in July 2022 and their symptoms returned, including pleurisy. Meloxicam cleared the pleurisy, and a back problem healed after swimming daily on a New Year holiday. From around late 2022/early 2023 chronic migraines with blurry vision and numbness sent them to the ER twice; antidepressants dulled the pain, and by September 2023 it was easing.

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What they tried

Their words about each treatment
  • meloxicam · Helped a lotMeloxicam fixed it up for me! In context ↗
  • physical therapy · No changeStill no diagnosis and physical therapy isn’t really helping. In context ↗
  • swimming · Helped a lotfor some reason swimming got me back to where I wanted to be In context ↗
  • anti depressants · HelpedThe headache still won't go away, even after the drugs, it's just dulled or the edge is taken off. In context ↗
  • CBD · WorseI can’t even handle cbd right now without a bunch of negative side effects In context ↗

Approaches: Exercise and activity

Their path

Very severeSevereModerateMildNear normalRecovered6 mo12 mo18 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 6 months after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
early 2022long COVID (a six-month "journey")I had just recovered from my 6th month journey In context ↗Not stated
July 2022recovered from the first long COVID boutI had just recovered from my 6th month journey and got covid again In context ↗Recovered
July 2022COVID reinfection; long COVID symptoms returned, including pleurisynow a couple weeks after, I’m starting to feel long covid symptoms again specifically pleurisy In context ↗Not stated
January 2023swam daily on a New Year holiday; the crater in the back healedfor some reason swimming got me back to where I wanted to be In context ↗Mild
February 2023chronic migraines with vision loss, numb hands and trouble speaking; two ER visitsI wasn’t able to do basic things like drive a car. In context ↗Moderate
September 2023months-long migraine finally easingjust now feels like it’s going away. In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Headaches & migraineExtreme chronic migraines. Blurry vision, constant headaches for +2 months In context ↗
  • Vision problemscouldn’t see (vision was completely blurry) In context ↗
  • Neuropathy & tinglingI lost feeling in my hands In context ↗
  • Brain fogwas having trouble speaking In context ↗
  • Breathlessnessit was from pleurisy inflammation of the lungs In context ↗

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