Long COVID with brain fog, neuropathy and insomnia; thiamine and diet brought no benefit
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill for
- 5 years
- Last post
- Jul 2026
In their words
- Condition: Long COVID
But it’s still pretty possible that it all started after the covid. I didn’t have those b1 deficiency symptoms before.
In context ↗ - At worst: Mild
Yesterday I was at the gym running at 15 km/h and this drowsiness continued.
In context ↗ - Now: No benefit
now i still have this brain fog with all this supplementation
In context ↗ - Began after: COVID
it’s still pretty possible that it all started after the covid.
- Says they never had: Post-exertional malaise
sports do not change nothing
Read from 11 of their posts and comments; links to the 10 this page draws on
Summary
A 19-year-old man in Brazil had at least five years of gut dysbiosis linked to thiamine deficiency, brain fog, neuropathy and later histamine-related insomnia. High-dose thiamine, benfotiamine, sulbutiamine and cofactors gave limited help; benfotiamine seemed to correct neuropathy and sweating but not brain fog. A low-histamine diet slightly helped sleep. He thought he was beating it in June 2026, but by July sulbutiamine was still doing nothing.
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What they tried
Also tried
Their words about each treatment
- gym, basketball, workouts · No change
i do gym 3x week and basketball 3x week, sports do not change nothing
In context ↗ - vitamin D3+K2 and sunlight · Not said
vit D 50k ui weekly
In context ↗ - zinc · Worse
i notice i developt this HI-related insomnia after supplementing zinc and curcumin for something like 6 months
In context ↗ - copper bisglycinate · No change
i started using 6mg of copper bysglicinate everyday, stopped the zinc and curcumin
In context ↗ - magnesium (bisglycinate, threonate) and low-dose potassium chloride · Not said
1- mag bisglycinate 300mg
In context ↗ - vitamin C · Not said
1g of acid ascorbic vit C synthetic
In context ↗ - benfotiamine, thiamine HCl, sulbutiamine · Helped
i still assume all those improvements only happened due benfotiamine
In context ↗ - methyl B12 · Not said
methyl B12 1000mcg
In context ↗ - B complex (B2 riboflavin, B3 niacinamide, folate) · Not said
2- regular riboflavin B2 500mg (2x 250mg at different intakes), 3- regular B complex
In context ↗ - glycine · Not said
i take glycine to sleep better
In context ↗ - fish oil · Not said
regular fish oils
In context ↗ - iron infusion · No change
i also did iron infusions 3 months ago to see if something would be better. Nope.
In context ↗ - keto diet · Not said
almost keto diet
In context ↗ - low histamine diet · Helped
if i do a low histamine diet for one day im allowed to sleep PERFECTLY good
In context ↗ - Cyproheptadine · No change
even with Cyproheptadine (an H1) regular dose. i’ve been awake for 30 hours
In context ↗ - vitamin A retinol · Not said
every other day i take 8000ui/2,4mcg of retinol vit A
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 4.6 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2021 | gut dysbiosis beganhave gut dysbiosis for at least 5 yearsIn context ↗ | Not stated | |
| September 2025 | extreme sleepiness, brain fog and suicidal distressI'm at a suicidal level from so much mental exhaustion ... Yesterday I was at the gym running at 15 km/hIn context ↗ | Mild | |
| November 2025 | benfotiamine corrected neuropathy, sweating and anxiety but not brain fogonly improvements/correction of neuropathy, hands sweaty and shaking, cold feet, anxiety+derealizationIn context ↗ | Mild | Thiamine / benfotiamine |
| February 2026 | developed histamine-related insomnia after zinc and curcumin10 months ago i developed insomnia related histamine problemsIn context ↗ | Mild | |
| June 2026 | thought he was beating gut dysbiosis and thiamine deficiencyi think i’m beating thisIn context ↗ | Mild | Thiamine / benfotiamine |
| July 2026 | sulbutiamine still gave nothingi use it everyday. nothing.In context ↗ | Mild |
Adverse events
- Zinc, Copper“i notice i developt this HI-related insomnia after supplementing zinc and curcumin for something like 6 months (end of 2024-start of 2025). my thoughts is probably it tanker my copper levels” In context ↗ Insomnia from treatment
Symptoms mentioned
Their words about their symptoms
- Brain fog
extreme difficulty concentrating
In context ↗ - POTS & dysautonomia
balance issues, vertigo
In context ↗ - Mast cell (MCAS) & allergies
insomnia related histamine problems
In context ↗ - Sleep problems
Everyday I feel extremely sleepy between 9/10 a.m. and 2/3 p.m
In context ↗ - Headaches & migraine
exploding with migraine
In context ↗ - Gut problems
severe gut dysbiosis
In context ↗ - Light & noise sensitivity
sensitivity to light
In context ↗ - Neuropathy & tingling
neuropathy, hands sweaty and shaking, cold feet
In context ↗ - Anxiety & low mood
anxiety+derealization
In context ↗ - Vision problems
eye floaters/white spots on my eyes
In context ↗