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Long COVID Mild → no benefitIll for 5 years

Long COVID with brain fog, neuropathy and insomnia; thiamine and diet brought no benefit

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill for
5 years
Last post
Jul 2026
In their words
  • Condition: Long COVIDBut it’s still pretty possible that it all started after the covid. I didn’t have those b1 deficiency symptoms before. In context ↗
  • At worst: MildYesterday I was at the gym running at 15 km/h and this drowsiness continued. In context ↗
  • Now: No benefitnow i still have this brain fog with all this supplementation In context ↗
  • Began after: COVIDit’s still pretty possible that it all started after the covid.
  • Says they never had: Post-exertional malaisesports do not change nothing
Read from 11 of their posts and comments; links to the 10 this page draws on

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Summary

A 19-year-old man in Brazil had at least five years of gut dysbiosis linked to thiamine deficiency, brain fog, neuropathy and later histamine-related insomnia. High-dose thiamine, benfotiamine, sulbutiamine and cofactors gave limited help; benfotiamine seemed to correct neuropathy and sweating but not brain fog. A low-histamine diet slightly helped sleep. He thought he was beating it in June 2026, but by July sulbutiamine was still doing nothing.

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What they tried

Their words about each treatment
  • gym, basketball, workouts · No changei do gym 3x week and basketball 3x week, sports do not change nothing In context ↗
  • vitamin D3+K2 and sunlight · Not saidvit D 50k ui weekly In context ↗
  • zinc · Worsei notice i developt this HI-related insomnia after supplementing zinc and curcumin for something like 6 months In context ↗
  • copper bisglycinate · No changei started using 6mg of copper bysglicinate everyday, stopped the zinc and curcumin In context ↗
  • magnesium (bisglycinate, threonate) and low-dose potassium chloride · Not said1- mag bisglycinate 300mg In context ↗
  • vitamin C · Not said1g of acid ascorbic vit C synthetic In context ↗
  • benfotiamine, thiamine HCl, sulbutiamine · Helpedi still assume all those improvements only happened due benfotiamine In context ↗
  • methyl B12 · Not saidmethyl B12 1000mcg In context ↗
  • B complex (B2 riboflavin, B3 niacinamide, folate) · Not said2- regular riboflavin B2 500mg (2x 250mg at different intakes), 3- regular B complex In context ↗
  • glycine · Not saidi take glycine to sleep better In context ↗
  • fish oil · Not saidregular fish oils In context ↗
  • iron infusion · No changei also did iron infusions 3 months ago to see if something would be better. Nope. In context ↗
  • keto diet · Not saidalmost keto diet In context ↗
  • low histamine diet · Helpedif i do a low histamine diet for one day im allowed to sleep PERFECTLY good In context ↗
  • Cyproheptadine · No changeeven with Cyproheptadine (an H1) regular dose. i’ve been awake for 30 hours In context ↗
  • vitamin A retinol · Not saidevery other day i take 8000ui/2,4mcg of retinol vit A In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered4.8 y5 y5.2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 4.6 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
2021gut dysbiosis beganhave gut dysbiosis for at least 5 years In context ↗Not stated
September 2025extreme sleepiness, brain fog and suicidal distressI'm at a suicidal level from so much mental exhaustion ... Yesterday I was at the gym running at 15 km/h In context ↗Mild
November 2025benfotiamine corrected neuropathy, sweating and anxiety but not brain fogonly improvements/correction of neuropathy, hands sweaty and shaking, cold feet, anxiety+derealization In context ↗MildThiamine / benfotiamine
February 2026developed histamine-related insomnia after zinc and curcumin10 months ago i developed insomnia related histamine problems In context ↗Mild
June 2026thought he was beating gut dysbiosis and thiamine deficiencyi think i’m beating this In context ↗MildThiamine / benfotiamine
July 2026sulbutiamine still gave nothingi use it everyday. nothing. In context ↗Mild

Adverse events

  • Zinc, Copper“i notice i developt this HI-related insomnia after supplementing zinc and curcumin for something like 6 months (end of 2024-start of 2025). my thoughts is probably it tanker my copper levels” In context ↗ Insomnia from treatment

Symptoms mentioned

Their words about their symptoms

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