Bedbound and unable to speak with long COVID, much better with acupuncture
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 4 years
- Last post
- Feb 2025
In their words
- Condition: Long COVID
early days of my long covid
In context ↗ - At worst: Severe
I was bedbound, lost the ability to speak and had to relearn how to translate the feelings/knowledge in my head to words.
In context ↗ - Now: Much better
I'm not 100% but I've seen an amazing amount of improvement.
In context ↗ - Began after: COVID
in the early days of my long covid
Read from 6 of their posts and comments; links to the 6 this page draws on
Summary
They were bedbound and unable to speak in early long COVID, roughly four years before their last post. Acupuncture and Chinese medicine helped when nothing else did, a nasal spray helped post-nasal drip, and daily word-finding games with rest helped recover their cognition. An herbalist later gave an amazing amount of improvement; they were not 100%, still limited by noise, light and walking, using a cane.
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What they tried
Also tried
Their words about each treatment
- acupuncture · Helped
acupuncture and TCM helped mine
In context ↗ - TCM · Helped
acupuncture and TCM helped mine. ... it's been helping me when nothing else did
In context ↗ - nasal spray olopatadine · Helped
I've had success with the nasal spray olopatadine for post nasal drip
In context ↗ - Bose QC Ultra noise-cancelling headphones · Helped
I can't believe how much they help the pain I feel from regular noise
In context ↗ - word-finding game on my phone · Helped a lot
The work I did every day with that little phone game was a huge part of how I recovered my cognition
In context ↗ - pacing · Helped
then to rest with my eyes closed (aka pacing)
In context ↗ - functional medicine doc · No change
functional medicine doc (tried, was worthless)
In context ↗ - herbalist · Helped a lot
Ended up seeing an herbalist for long covid ... I'm not 100% but I've seen an amazing amount of improvement
In context ↗
Approaches: Alternative therapies · Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | bedbound, lost the ability to speakI was bedbound, lost the ability to speak and had to relearn how to translate the feelings/knowledge in my head to words.In context ↗ | Severe | |
| 2022-02-19 | air hunger easedacupuncture and TCM helped mine ... it's been helping me when nothing else did.In context ↗ | Moderate | |
| 2022-06-19 | post nasal drip responded to nasal sprayI've had success with the nasal spray olopatadine for post nasal drip.In context ↗ | Moderate | Olopatadine (Patanase) |
| 2025-01-30 | still limited by noise, light and walking; uses headphones and a caneI struggle with noise, light, walking, and some other stuff ... A cane when neededIn context ↗ | Moderate | |
| 2025-02-20 | amazing amount of improvement with an herbalist, not 100%I'm not 100% but I've seen an amazing amount of improvement.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Brain fog
I would know something but not know how to *say* it.
In context ↗ - Light & noise sensitivity
I struggle with noise, light, walking, and some other stuff
In context ↗ - Breathlessness
acupuncture and TCM helped mine
In context ↗ - Flu-like symptoms
unable to speak for days at a time, pain in throat, and moderate throat swelling
In context ↗ - Headaches & migraine
just trying to find the words made my head hurt terribly
In context ↗ - Mast cell (MCAS) & allergies
I had allergies before covid
In context ↗ - Pain & fibromyalgia
when the sensory issues + pain are real bad
In context ↗ - Temperature regulation
Sucks not to be able to go sit outside when it's warm
In context ↗
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