Months in bed after COVID with ME/CFS, much better on a supplement protocol
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 30 years
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
How I found cause of my CFS
In context ↗ - At worst: Severe
After COVID, I spent several months in bed and was barely able to do household chores.
In context ↗ - Now: Much better
I have the energy to work and generally live ... It is pretty stable for three months already.
- Began after: nothing they could name
Since childhood, I've suffered from brain fog, weakness, unexplained anxiety, digestive issues
In context ↗
Read from 7 of their posts and comments; links to the 5 this page draws on
Summary
A trans woman, 32, had brain fog, weakness, daily pain, digestive trouble and frequent colds since childhood, and was months in bed after COVID. Zinc and supplement cocktails helped only temporarily; after amino-acid and glutathione testing she was prescribed alpha lipoic acid, B5, CoQ10, B vitamins, succinic acid, iron and methylfolate. Two weeks on she had energy to work and no digestive issues, though her head stayed foggy; three months on the protocol was stable.
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What they tried
What they credit
Also tried
Their words about each treatment
- zinc · Helped a lot
I started taking zinc and, hooray, hooray—I recovered. ... A few months later, some of the symptoms returned.
In context ↗ - cocktail of supplements, minerals, and vitamins · Helped
The problem was, I had to change the cocktail. Old versions stopped working
In context ↗ - HRT (estradiol) · Worse
For first two months of estradiol it was an excellent and I got significantly better but then slightly month to month it went bad and finished much worse than pre-hrt.
In context ↗ - vitamins in bioavailable forms—methylated and others · Helped
I discovered a new class of substances—vitamins in bioavailable forms—methylated and others, and they helped for a while.
In context ↗ - creatine · Helped
I also played around with creatine and phosphatidylcholine. They also helped, especially creatine.
In context ↗ - vitamin A and vitamin E · Not said
I had to take them literally constantly, in very large doses, to somehow maintain my levels at the lower end of the normal range.
In context ↗ - alpha lipoic acid · Helped a lot
ALA is the main thing for me but it doesn’t work without all other stuff listed.
In context ↗ - coenzyme Q10 · Helped
There was no CoQ10 deficiency.
In context ↗ - biotin · Helped
since adding ALA, succunic acid and biotine to b complex in coenzyme form
In context ↗ - B1 · Helped
I was prescribed alpha lipoic acid, coenzyme Q10, biotin, B1, B2, B3 in accessible form, B5, succinic acid, iron, methylfolate, and periodic courses of adenosylcobalamin and methylcobalamin.
In context ↗ - B5 · Helped a lot
The main cure according to interpretation of analysis are alpha lipoic acid and b5.
In context ↗ - methylfolate · Helped
The methylfolate is just cheap and works.
In context ↗ - adenosylcobalamin and methylcobalamin · Helped
periodic courses of adenosylcobalamin and methylcobalamin
In context ↗
Approaches: Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 3 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| childhood | brain fog, weakness, anxiety, digestive issues and daily pain from childhoodSince childhood, I've suffered from brain fog, weakness, unexplained anxiety, digestive issuesIn context ↗ | Mild | |
| adult, before supplements | rapidly worsened; three months unable to get out of bedOne summer, I was sick for three months, unable to get out of bed.In context ↗ | Severe | |
| after COVID | COVID worsened symptoms; months in bedAfter COVID, I spent several months in bed and was barely able to do household chores.In context ↗ | Severe | |
| start of HRT | two excellent months on estradiolFor first two months of estradiol it was an excellent and I got significantly betterIn context ↗ | Not stated | Hormone replacement therapy (HRT) |
| a year after starting HRT | slowly went bad on HRTbut then slightly month to month it went bad and finished much worse than pre-hrtIn context ↗ | Not stated | |
| after micronutrient testing | recovered on zincI started taking zinc and, hooray, hooray—I recovered.In context ↗ | Recovered | Zinc |
| a few months after zinc | symptoms returnedBUT…. A few months later, some of the symptoms returned.In context ↗ | Not stated | |
| 2026-10-10 | stable on mitochondrial protocol for three monthsIt is pretty stable for three months already.In context ↗ | Mild |
Adverse events
- Hormone replacement therapy (HRT)“For first two months of estradiol it was an excellent and I got significantly better but then slightly month to month it went bad and finished much worse than pre-hrt.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Brain fog
my head is foggy
In context ↗ - Muscle weakness
I've suffered from brain fog, weakness
In context ↗ - Anxiety & low mood
unexplained anxiety
In context ↗ - Gut problems
digestive issues—heartburn, occasional diarrhea, food sitting in my stomach for 4-5 hours
In context ↗ - Pain & fibromyalgia
I suffered from almost daily body pain, every joint and muscle aching.
In context ↗ - Post-exertional malaise
Attending social events, grocery shopping, or preparing a full meal used to tire me out for at least a day. That's not the case anymore.
In context ↗ - Flu-like symptoms
I haven't had a single day of flu-like symptoms in the past two weeks.
In context ↗ - Vision problems
I developed night blindness and eye problems.
In context ↗
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