Long COVID
Mild → somewhat betterIll 2 years before improving or writingNeeds ongoing treatment
Long COVID with brain fog and exercise intolerance, somewhat better after two years
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 2 years
- Last post
- Jul 2023
In their words
- Condition: Long COVID
I had a very long recovery from my acute infection, and I'm sure I have long covid.
In context ↗ - At worst: Mild
I work from home, so I'm able to lay down on the couch while trying to get work done, but I can't hardly sit up for long, and in any other job I'd be forced to call out.
In context ↗ - Now: Somewhat better
Obviously I've gotten better over time but. The brain fog messes me up.
In context ↗ - Began after: COVID
I got covid in July 2021
Read from 11 of their posts and comments; links to the 10 this page draws on
Summary
A US person who caught COVID in July 2021 was hospitalised for several days when their oxygen dropped and they were too weak to stay on their feet. They went on to have months of brain fog, sinus and mucus problems, migraines, heat sensitivity and exercise intolerance, and took antihistamines every four hours. They improved slowly over two years while working from home, but a summer 2023 respiratory flare left them vomiting daily and unable to go outside.
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What they tried
Also tried
Their words about each treatment
- inhaler · Helped
needed a rescue inhaler up until the first week or so of Oct ... I managed to get an inhaler prescribed. It's helped
- exercising again · Worse
I started to do some exercising again today, but I feel incredibly discouraged after trying. ... symptoms came back full swing, I was feeling bad for at least 4 days after
- migraine meds · Not said
I'd had my migraines under control with meds but after covid I went back to daily lengthy migraine headaches
In context ↗ - birth control · Not said
I normally take birth control to keep things from getting painful to the point I can't move, but I had that severe pain even with birth control.
In context ↗ - ADHD meds · Not said
Some days it feels like the brain fog has nullified my ADHD meds, just can't focus.
In context ↗ - generic zyrtec · Helped
If I don't take an antihistamine every 4 hours, I get so much sinus and mucus build up that I choke and vomit.
In context ↗ - moving to a new apartment after mold was found · Helped
It's not been as severe since I moved to a new apartment (last one turned out to have mold)
In context ↗ - trip to Washington, DC · Helped
I recently took a trip to Washington, DC and was surprised by how well I did.
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| July 2021 | COVID-19; hospitalised with dropping oxygen and too weak to standI was hospitalized for several days since my oxygen dropped and I was so weak I couldn't stay stable on my feet.In context ↗ |
| 2021-10-23 | felt close to normal apart from daily mucus and coughingthis past month I've felt like I was returning to normal (aside from excess mucus that's causes coughing and vomiting if I'm not careful on a daily basis)In context ↗ |
| 2022-04 | energy crashed, lightheaded, could barely sit up while working from the couchmy energy just crashing ... I can't hardly sit up for longIn context ↗ |
| 2022-04-23 | crashed for days every time she exercisedIt felt like I'd been punched, symptoms came back full swing, I was feeling bad for at least 4 days after.In context ↗ |
| 2022-05-26 | slow recovery, some symptoms eased but others stayedMy recovery was slow and difficult. Symptoms let up, but some just never seemed to go away.In context ↗ |
| 2022-08-02 | moved out of a mouldy apartment; sinuses less severe and a trip to DC went wellIt's not been as severe since I moved to a new apartment (last one turned out to have mold)In context ↗ |
| 2023-01-10 | better over time but brain fog and exercise intolerance still affecting workObviously I've gotten better over time but.In context ↗ |
| 2023-07-21 | summer respiratory flare with daily vomiting; inhaler helped but could not go outsideI managed to get an inhaler prescribed. It's helped, but the summer is still really rough. I basically can't go outsideIn context ↗ |
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessGut problemsHeadaches & migraineLoss of smell or tasteMast cell (MCAS) & allergiesMuscle weaknessPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseTemperature regulation
Their words about their symptoms
- Post-exertional malaise
exercise causes unpredictable levels of relapse that can screw me over for a week or two at a time
In context ↗ - Brain fog
I've had varying levels of brain fog
In context ↗ - POTS & dysautonomia
feeling lightheaded or dizzy
In context ↗ - Mast cell (MCAS) & allergies
I just feel allergic to the air itself despite never even having allergies at all prior to covid
In context ↗ - Headaches & migraine
Covid made my migraines go into overdrive.
In context ↗ - Gut problems
brain fog, nausea, body aches
In context ↗ - Pain & fibromyalgia
I had awful fatigue, pain, increased migraine frequency
In context ↗ - Breathlessness
exertion still starts me coughing and wheezing again
In context ↗ - Muscle weakness
I was so weak I couldn't stay stable on my feet
In context ↗ - Temperature regulation
fatigue, exercise intolerance, heat sensitivity, brain fog
In context ↗ - Loss of smell or taste
I also only recently got back what I assume is most of my ability to smell
In context ↗ - Anxiety & low mood
I'm afraid I'm gonna lose it all.
In context ↗