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ME/CFS Severe → recoveredIll 1 year before improving or writing

Moderate to severe ME/CFS after EBV, now fully recovered; NAC and CoQ10 raised baseline

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill before improving or writing
1 year
Last post
Dec 2025
In their words
  • Condition: ME/CFSmy ME/CFS remains mild and slowly improving In context ↗
  • At worst: SevereI have been moderate/severe for a time during the 12 months I had ME/CFS In context ↗
  • Now: RecoveredI have made a full recovery. In context ↗
  • Began after: glandular fever or EBVIn late 2024, I experienced what I now know (confirmed by pathology and symptom specificity) were **EBV reactivation symptoms**
Read from 5 of their posts and comments; links to the 4 this page draws on

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Summary

A former athlete aged 21 developed ME/CFS after EBV reactivation symptoms in late 2024 and was moderate to severe for a time. They paced from February 2025, tracked symptoms and readiness in a spreadsheet, and credit NAC and CoQ10 with raising their baseline, though they say remission at 10-11 months may just have been timing. By December 2025, around twelve months in, they reported a full recovery.

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What they tried

Also tried

being barefoot in nature· Helpedgym protocol· Helped
Their words about each treatment
  • pacing · HelpedSince February this year, I've been pacing myself (not perfectly), which I believe is why my ME/CFS remains mild and slowly improving. In context ↗
  • vitality scoring spreadsheet · HelpedUsing data I was able to start actually pacing and I never had those days where it was like, fuck why did I crash so hard. In context ↗
  • N-acetyl cysteine · Helped a lotNAC basically obliterated my flu-like symptoms and increased my baseline dramatically. It really was a miracle drug for me In context ↗
  • coq10 · HelpedIt really was a miracle drug for me, along with coq10. In context ↗
  • getting sunlight · HelpedI found that getting sunlight and being barefoot in nature, breathwork and supplementation ... worked amazingly for me In context ↗
  • gym protocol · HelpedI started sooo small, but with this spreadsheet was able to do magnitudes more each week. In context ↗

Approaches: Mind-body practices · Pacing · Supplements

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo6 mo9 mo12 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
late 2024EBV reactivation onset while still training and studyingI pushed through because of my sporting commitments In context ↗Mild
—lowest point, moderate to severeI have been moderate/severe for a time during the 12 months I had ME/CFS In context ↗Severe
around 10-11 months in (2025)paced out of bed, walks outside, one 3-hour shift a weekI had just paced my way out of bed and was able to take walks outside, work 1 shift a week for 3 hours etc. In context ↗MildPacing and the energy envelope
2025-12-27full recoveryI have made a full recovery. In context ↗Recovered

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseI found that I’d often crash on accident. In context ↗
  • Flu-like symptomsNAC basically obliterated my flu-like symptoms In context ↗
  • Pain & fibromyalgiajoint pain (for me it was shoulder/neck so I labelled it as such) In context ↗
  • Brain fogmood markers i.e., positivity, alertness, brain fog, anxiousness In context ↗
  • Sleep problemssleep score (times woken, adherence to routine, hours slept, time till sleep achieved) In context ↗

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