ME/CFS
Moderate → no benefit
Moderate ME/CFS while working, still in bed three days after booster, no benefit
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Feb 2022
In their words
- Condition: ME/CFS
I've got moderate CFS
In context ↗ - At worst: Moderate
I've got moderate CFS, but I'm a highly functioning human who can't stop because I've gotta pay dem bills yo.
In context ↗ - Now: No benefit
Since then, I have felt like death warmed up.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Stream 55402 had moderate CFS but kept working, managing with diet and light exercise. COVID vaccines caused a flare they recovered from in three weeks; a car accident in November left a concussion, and COVID in January left fatigue and a cough. A third booster brought numb arms, nausea, confusion, headaches, fever and severe fatigue, and three days later they were still in bed and too ill for small chores.
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What they tried
Also tried
Their words about each treatment
- diet · Helped
I was managing my CFS quite well with diet, and light exercise
In context ↗ - light exercise · Helped
managing my CFS quite well with diet, and light exercise
In context ↗ - COVID vaccination as treatment · Worse
The vaccines sent me into a flare, but I recovered within 3 weeks.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | moderate CFS, working and managing with diet and light exerciseI've got moderate CFS, but I'm a highly functioning human who can't stop because I've gotta pay dem bills yo.In context ↗ | Moderate |
| — | flare after COVID vaccination, recovered in three weeksThe vaccines sent me into a flare, but I recovered within 3 weeks.In context ↗ | Not stated |
| November | car accident with concussionI was in a car accident in November and had a concussionIn context ↗ | Not stated |
| January | caught COVID, felt terrible sincegot covid in January. Since then, I have felt like death warmed up.In context ↗ | Moderate |
| February 2022 | booster jab brought numb arms, nausea, confusion, headaches, fever and severe fatigue; still in bed three days laterThree days later and I'm still in bed. I have tried to make small excursions and do some chores but it's all too muchIn context ↗ | Moderate |
Adverse events
- COVID vaccination as treatment“The vaccines sent me into a flare, but I recovered within 3 weeks.” In context ↗ Made symptoms worse
- COVID vaccination as treatment“I got my third, booster jab on Friday and about 12 hours later (I was at work) I lost feeling in both my arms due to my neck and shoulder pain, nausea, confusion, headaches, fever and serious fatigue.” In context ↗ Side effects
Symptoms mentioned
Brain fogGut problemsHeadaches & migraineNeuropathy & tinglingPain & fibromyalgiaPost-exertional malaiseTemperature regulation
Their words about their symptoms
- Post-exertional malaise
I have tried to make small excursions and do some chores but it's all too much
In context ↗ - Neuropathy & tingling
I lost feeling in both my arms
In context ↗ - Pain & fibromyalgia
my neck and shoulder pain
In context ↗