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Long COVID Mild → near normalIll 8 months before improving or writing

Long COVID with tinnitus, now nearly back to normal after physical therapy and walking

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
8 months
Last post
Oct 2023
In their words
  • Condition: Long COVIDAt least my regular doctor admitted long Covid is uncharted territory In context ↗
  • At worst: MildThe heart racing has gone away and the costochondritis has gotten way better with PT. Brain fog and memory issues are slowly going away. In context ↗
  • Now: Near normalI still have tinnitus ... I would say I’m 90-95 percent recovered.
  • Began after: COVIDI had original Covid in 2020 in March too and recovered. Omicron did such a number on me.
Read from 13 of their posts and comments; links to the 9 this page draws on

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Summary

Crocus 61864 caught COVID in March 2020 and recovered, then developed long COVID after Omicron, with shrieking tinnitus, brain fog, heart racing and costochondritis. Physical therapy eased the chest pain, Zyrtec and meclizine quieted the tinnitus, and walking from month eight helped them recover. A cold at five months set them back. By April 2023 they put themselves at 90-95% recovered, with tinnitus remaining.

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Asking aboutCrocus 61864’s story

What they tried

Their words about each treatment
  • physical therapy · HelpedI did physical therapy and saw a lot of improvement. In context ↗
  • alcohol and vinegar drops · HelpedI started that and it has seemed to quiet the tinnitus. In context ↗
  • Zyrtec · Not saidDevoured any info from other long Covid sufferers about tinnitus and switched to taking Zyrtec. In context ↗
  • meclizine · Not saiddoc prescribed me meclizine and when it has been obnoxiously loud, I’ll take it too. In context ↗
  • GABA · Helpedhaven’t had to rely on GABA at night as much. I was not able to live without it in those early days of recovery. In context ↗
  • Magnesium · No changeDid so many supplements and nothing seemed to help. In context ↗
  • Loratadine (Claritin) · HelpedI was on Loratadine (Claritin), but switched to Zyrtec. Don’t think it was handling my allergies anymore In context ↗
  • Nasonex · Not saidStill on Nasonex. In context ↗
  • sudafed · Not saidTried sudafed in the early days when I struggled with sinus pressure. In context ↗
  • walking · HelpedNot breathing exercises but started walking at 8 months in. Huff and puff now if walking up a hill but I would say it has helped me to recover. In context ↗
  • Prednisone · No changePrednisone didn’t fix my tinnitus In context ↗
  • antibiotic · Not saidI found a doc willing to give me an antibiotic too to help with the long term sinus issues I couldn’t seem to get over. In context ↗
  • bromelain · HelpedTaking bromelain for inflammation at the moment and I seem to be back on track. In context ↗

Approaches: Exercise and activity · Physiotherapy and rehab · Supplements

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
January 2022Long COVID after Omicron: shrieking tinnitus, brain fog, heart racing, costochondritis, unrefreshing sleepOmicron did such a number on me. In context ↗Mild
April 2022tinnitus softer, heart racing gone, costochondritis better, brain fog easingthe costochondritis has gotten way better with PT In context ↗Mild
May 2022crashed after walking too soon and catching a cold; tinnitus returnedGot a cold and mine came back with a vengeance once I started to get over the cold. In context ↗Mild
October 2022walking since month eight; huge improvement, still breathless on hillsTen months and I’m starting to see huge improvement in this area. In context ↗MildWalking
February 2023physically doing most of what they used to enjoy, breathing hard on hillsphysically I do most of the things I used to enjoy In context ↗Near normalWalking
April 202390-95% recovered, tinnitus remainsI would say I’m 90-95 percent recovered. In context ↗Near normalWalking

Adverse events

  • Physical therapy / physiotherapy“someone mentioned having them work inside your mouth. It’s super unpleasant btw. ... My therapist also did some work opening up the muscles in the front. That was effing painful.” Side effects
  • Walking“Tried too soon at 5 months and got sick with a cold. That was a setback.” In context ↗ Made symptoms worse

Symptoms mentioned

Their words about their symptoms
  • TinnitusI still have tinnitus and I’m resigned to never getting rid of it. In context ↗
  • Brain fogBrain fog and memory issues are slowly going away. In context ↗
  • Heart symptoms & palpitationsThe heart racing has gone away In context ↗
  • Pain & fibromyalgiathe costochondritis has gotten way better with PT In context ↗
  • BreathlessnessStill get out of breath walking up hills, but I’ll take it. In context ↗
  • Sleep problemshaven’t had to rely on GABA at night as much In context ↗

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