Long COVID at worst unable to care for herself, now much better and working full time
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 10 months
- Last post
- Nov 2024
In their words
- Condition: Long COVID
Long Covid for 12 months
In context ↗ - At worst: Severe
at the low, couldn’t drive or take care of myself. Was out of work for 6 months
In context ↗ - Now: Much better
Feeling 68% better, with confidence that I will improve to 100% with continued commitment.
In context ↗ - Began after: COVID
I got Covid for the first time last April.
In context ↗
Read from 10 of their posts and comments; links to the 9 this page draws on
Summary
A 36-year-old woman developed long COVID after a COVID infection in April 2023; at her worst she could not drive or care for herself and was off work for six months. Over the next year she used low-dose naltrexone, NAC, Botox, stellate ganglion blocks, acupuncture, an elimination diet and graded walking. By April 2024 she felt about 68% better and had returned to work full time, and in November 2024 she encouraged another person that their condition could improve.
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What they tried
What they credit
Also tried
Their words about each treatment
- Functional medicine / integrative medicine · Helped
Functional medicine - taking a wholistic approach has helped my healing journey.
In context ↗ - Low dose naltrexone · Helped
ramped up to 4.5 mg of Naltrexone (#ldn)
In context ↗ - Amino acids · Helped
taking Low dose naltrexone, amino acids, other vitamins and medicines
In context ↗ - Rest · Helped
mixed with rest, diet, mentality
In context ↗ - Acupuncture · Helped
Also recommend at least three sessions of acupuncture ... That helped me immensely.
In context ↗ - Valerian (Tagara) · Helped
Instead for sleep, Valerian (Tagara) has been working for me to fall asleep deeply.
In context ↗ - Melatonin · No change
Crossed out Melatonin from this list because it doesn’t work for me.
In context ↗ - Botox for migraines · Helped
Botox for migraines from a headache specialist
In context ↗ - N-acetyl-cysteine (NAC) · Helped
1k mg of N-acetyl-cysteine (NAC)on empty stomach for heart rate
In context ↗ - Daily allergy med (Allegra) · Helped
a daily allergy med like Allegra
In context ↗ - Stellate Ganglion Nerve Block · Helped
Stellate Ganglion Nerve Block (2 x both sides)
In context ↗ - Walking 5k-7k steps a day · Helped
worked up to walking 5k-7k steps a day (ideally outside)
In context ↗ - Speech therapy and neuro PT · Helped
speech therapy and neuro pt about 8 sessions each
In context ↗ - Adderall extended release · Helped
a stimulant like adderall extended release low dose
In context ↗ - Yoga and meditation · Helped
yoga 2x/meditation 7x a week
In context ↗ - Multi vitamins · Helped
daily multi vitamins
In context ↗ - Magnesium · Helped
magnesium daily
In context ↗ - Water/electrolytes (Lmnt) · Helped
water/electrolytes (Lmnt is sugar free)
In context ↗ - Self massage or cupping · Helped
self massage or cupping
In context ↗ - CBD/CBG/cannabis · Helped
CBD/CBG/cannabis, as needed (indica specific)
In context ↗ - Food sensitivity elimination diet · Helped
food sensitivity elimination diet, only ate what was green on test for two weeks, then slowly introduced yellow
In context ↗ - 48 hr water fasts · Not said
48 hr water fasts w. Any type of flare up (Skin/GI/etc.)
In context ↗ - Naratriptan · Helped
when really bad naratriptan. I use all of these methods
In context ↗ - Methotrexate · Not said
for lichen Planus: - methotextrate .4
In context ↗ - Steroids oral/topical · Not said
- steroids oral/topical as needed
In context ↗ - Ayurvedic lifestyle · Helped
incorporating an Ayurvedic lifestyle
In context ↗ - Positive mindset and affirmations · Helped
lastly, most important, positive mindset/outlook with positive affirmations for mind/body connection
In context ↗
Approaches: H1 antihistamines · POTS medication · Alternative therapies · Amino acids and carnitine · Diet · Exercise and activity · Mind-body practices · Other drugs and medicines · Pacing · Stimulants · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The first step with a time is 10 months after onset: the story doesn’t say how ill they were before that. The dashed part: the story doesn’t say when. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| April 2023 | first COVID infection, start of long COVIDI got Covid for the first time last April.In context ↗ | Not stated | |
| 2023 (before April 2024) | at her low, could not drive or care for herself, off workat the low, couldn’t drive or take care of myself. Was out of work for 6 monthsIn context ↗ | Severe | |
| 2024-02-08 | just starting to feel betterJust now starting to feel better - taking Low dose naltrexone, amino acids, other vitamins and medicines mixed with rest, diet, mentality, and incorporating an Ayurvedic lifestyle.In context ↗ | Moderate | Low-dose naltrexone |
| 2024-04-20 | first week back at work full time, feeling 68% betterWas out of work for 6 months, just completed my first week back at work. Feeling 68% betterIn context ↗ | Mild | Low-dose naltrexone |
| 2024-11-12 | two years in, expects further improvementI think it could improve, like mine - I’m two years into it.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Brain fog
GI issues with no explanation, brain fog, headache
In context ↗ - Pain & fibromyalgia
fibromyalgia, GI issues with no explanation, brain fog, headache, migraine, body pain/ache
In context ↗ - Headaches & migraine
when really bad naratriptan
In context ↗ - Gut problems
GI issues with no explanation
In context ↗ - Anxiety & low mood
anxiety/depression, general weakness
In context ↗ - Muscle weakness
general weakness
In context ↗ - Neuropathy & tingling
full body/head nerve pain
In context ↗ - Sleep problems
for sleep, Valerian (Tagara) has been working for me to fall asleep deeply
In context ↗
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