Long COVID
Severe → much betterIll 2.5 years before improving or writing
Extremely ill with long COVID and neurological symptoms, now a lot better
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2.5 years
- Last post
- May 2024
In their words
- Condition: Long COVID
I had some long covid symptoms (er they think at least)
In context ↗ - At worst: Severe
Fatigue to the point of not getting out of bed.
In context ↗ - Now: Much better
I’m a lot better.
In context ↗ - Began after: another virus
I honestly think I also had some sort of virus that caused neurological symptoms.
Read from 11 of their posts and comments; links to the 8 this page draws on
Summary
They became extremely ill in late September 2021 with nausea and fatigue, followed by neurological symptoms; doctors suspected a mono-like virus rather than COVID. Twitching, tongue fasciculations, nerve pain and speech problems left them fearing ALS despite clean tests. Cymbalta eased nerve pain but made everything else worse; they stopped it after three weeks. They slowly improved with relapses and by May 2024 were a lot better; they mentioned a minor seizure they hadn't realized was one.
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What they tried
Also tried
homemade chicken soup· Helped a lotCymbalta· Much worse
Their words about each treatment
- Cymbalta · Much worse
It helped those pains but made EVERYTHING else 10x worse
In context ↗ - homemade chicken soup · Helped a lot
I have felt better than I’ve ever felt since this all started
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| late September 2021 | sudden nausea, vomiting and extreme fatigue, then neurological symptomsThen last weekend of September I got extremely sick with like nausea and fatigue.In context ↗ |
| early November 2021 | most symptoms began to fade before CymbaltaBy the time of this it was first week of November, and most of the symptoms had begun go fade or get somewhat better.In context ↗ |
| December 2021 | Cymbalta brought on twitching and made all neurological symptoms worseIt made all my neuro symptoms worse, so I quit that quickly.In context ↗ |
| January 2022 | many symptoms subsided after stopping CymbaltaMany symptoms have began to finally subside.In context ↗ |
| April 2022 | slow improvement with relapses; could not run a full mileOverall, it had slowly gotten better. I do have relapses thoughIn context ↗ |
| November 2022 | better; doctors attributed it to monoYeah I’m better. They actually believe it was Mono that caused this based on a number of factors.In context ↗ |
| May 2024 | a lot better; a minor seizure was identified as the causeI’m a lot better. Turns out it wasn’t COVID that caused all of this. I had a minor seizure, didn’t realize it was a seizureIn context ↗ |
Adverse events
- Duloxetine (Cymbalta)“It helped those pains but made EVERYTHING else 10x worse” In context ↗ Made symptoms worse
- Duloxetine (Cymbalta)“plus just new horrible side effects (not neurological but just horrible still)” In context ↗ Side effects
- Duloxetine (Cymbalta)“it caused all the muscle twitching and fasciculations” In context ↗ Made symptoms worse
Symptoms mentioned
BreathlessnessGut problemsHeart symptoms & palpitationsMuscle weaknessNeuropathy & tinglingPain & fibromyalgiaSleep problemsVision problems
Their words about their symptoms
- Gut problems
it started with extreme nausea, I was puking every few hours and extreme fatigue
In context ↗ - Pain & fibromyalgia
random stabbing nerve pain everywhere at almost all times
In context ↗ - Neuropathy & tingling
Pins and needles in certain limbs.
In context ↗ - Muscle weakness
Half my body was cramping, stiff, and weak.
In context ↗ - Heart symptoms & palpitations
random spurts of sharp heart pains
In context ↗ - Breathlessness
shortness of breath
In context ↗ - Sleep problems
a few nights of combined little sleep
In context ↗