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Long COVID Moderate → relapsedIll 5 months before improving or writing

Long COVID with pain, fevers and brain fog, improved then relapsed

Acorn 86441 on RedditLast post May 2022

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
5 months
Last post
May 2022
In their words
  • Condition: Long COVIDFrom Jan-April, doctor suspected long covid, everything else ruled out and timing very suspicious. In context ↗
  • At worst: ModerateUsed to do about 15hrs /wk martial arts training before that, then couldn't do any. In context ↗
  • Now: Relapsed4 mths of that and was starting to improve (got to 3hrs/wk training) but I got covid (again?) at Easter and got very sick, much worse In context ↗
  • Began after: COVIDStarted in late December 2021 when Omicron was taking off in Australia.
Read from 4 of their posts and comments; links to the 4 this page draws on

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Summary

Acorn 86441 became ill in late December 2021 when Omicron was taking off in Australia, though the infection was never confirmed by testing, with muscle and joint pain, weakness, recurring fevers, headaches, sore throat, and brain fog with crashes after exercise. A doctor treated the joint pain with prednisone, which helped, and by around April they had improved to about three hours a week of training. A suspected reinfection at Easter set them back and they were still sick in May 2022.

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What they tried

Also tried

steroids (prednisone)· Helpedantioxidants· Helpedanti-inflammatories· Helpedprobiotic with bifidobacterium infantis· Helped
Their words about each treatment
  • steroids (prednisone) · Helpedthe doctor tried me on steroids (prednisone) ... it actually really helped. Pain reduced to a more background level. In context ↗
  • antioxidants · HelpedGradually improved over time, antioxidants helped a lot. In context ↗
  • anti-inflammatories · HelpedThe only thing I've found that helps so far is anti-inflammatories but they affect your stomach lining so can't take them for too long. In context ↗
  • probiotic with bifidobacterium infantis · HelpedI started a probiotic that had been shown to help some people with chronic fatigue syndrome - it helped a little- one that has bifidobacterium infantis. In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
late December 2021came down with COVID (Omicron), could no longer trainStarted in late December 2021 when Omicron was taking off in Australia. Muscle pain and weakness, joint pain, low-grade fevers recurring, headaches, recurring sore throat, unable to exercise. In context ↗Moderate
April 2022joint pain reduced to background and they got back to 3 hrs/wk training4 mths of that and was starting to improve (got to 3hrs/wk training) In context ↗MildCorticosteroid pulses
Easter 2022crashed after a suspected COVID reinfection at Easterbut I got covid (again?) at Easter and got very sick, much worse In context ↗Moderate
May 2022still sick four weeks after the reinfection, joint pain coming backStill sick now at almost 4wk mark. ... Right now though it's coming on again because of recent covid 4 wks ago, but not at the same level as initially.Moderate

Adverse events

Symptoms mentioned

Brain fogFlu-like symptomsHeadaches & migraineMuscle weaknessPain & fibromyalgiaPost-exertional malaiseTemperature regulation
Their words about their symptoms

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