Bedridden with long COVID for a year, now much better and able to work from home
- Condition
- Long COVID
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill before improving or writing
- 5 years
- Last post
- Jul 2025
In their words
- Condition: Long COVID
I got sick in July 2020 I only had Covid one time
In context ↗ - At worst: Very severe
I was bedridden for the first year. My mom had to take off her full-time job to take care of me.
In context ↗ - Now: Much better
I can actually stand up and be functional now compared to before where I had to have my mother make all my meals and help me walk around the apartment.
In context ↗ - Began after: COVID
I only had Covid one time in the first wave
Read from 14 of their posts and comments; links to the 9 this page draws on
Summary
Dune 17438 fell ill with COVID-19 in July 2020 and was bedridden for the first year, needing their mother to make their meals and help them walk, with severe POTS, tachycardia of 150-160 on standing, head pressure, neuropathy and constant derealization. Over the next years most symptoms eased; by 2024 they could stand, walk and work from home, though derealization and milder POTS remained. They were never reinfected and never vaccinated.
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What they tried
What they credit
Also tried
Their words about each treatment
- time · Helped
3 years later, I can stand and walk. My tachycardia has gone down (not 100%)
In context ↗ - watching and listening to ASMR · Helped
Trying thing to calm my nervous system down like watching and listening to ASMR everyday helped but it was so hard.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| July 2020 | COVID-19, first waveI got sick in July 2020 I only had Covid one timeIn context ↗ | Severe |
| 2020–2021 (first year) | bedridden, mother gave up her job to care for them, hospitalised 3 timesI was bedridden for the first year. My mom had to take off her full-time job to take care of me.In context ↗ | Very severe |
| about 1.5 years in (early 2022) | became more functional; could play video games and started working from homeAfter I started to be more functional, but not recovered I was able to play video games againIn context ↗ | Moderate |
| 2023-08-06 | could stand and walk again, tachycardia lower3 years later, I can stand and walk.In context ↗ | Mild |
| 2023-10-24 | major difference from the first year, though not fully recoveredNot fully recovered at alll, but from where I was in the first year... major difference..In context ↗ | Mild |
| 2024-03-26 | a lot of things better; POTS more manageable, still constant derealizationI am not recovered 100% by any means, but definitely made a lot of progress since the first wave.In context ↗ | Mild |
| 2025-07-02 | word-finding problem goneThe word thing doesn’t happen anymoreIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
my dysautonomia and POTs was off the freaking charts ... I still have pots but it’s way more manageable than before
In context ↗ - Heart symptoms & palpitations
My tachycardia has gone down (not 100%) but around 100-120
In context ↗ - Headaches & migraine
I had tons of head pressure in the first year, daily almost. It lessened over time, it happens occasionally now
In context ↗ - Neuropathy & tingling
neuropathy in my face head and limbs was so painful I was getting the craziest brain zaps
In context ↗ - Brain fog
The word thing doesn’t happen anymore
In context ↗ - Anxiety & low mood
I’m still very anxious
In context ↗ - Sleep problems
On the cusp of falling asleep I get jolted with adrenaline and heart reaching that jolts me away.
In context ↗ - Breathlessness
it felt like I couldn’t breathe
In context ↗ - Tinnitus
Tinnitus is better.
In context ↗ - Temperature regulation
since I developed heat sensitivity
In context ↗
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