Long COVID with breathlessness and brain fog, physically same on mirtazapine and therapy
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill for
- 17 months
- Last post
- Aug 2021
In their words
- Condition: Long COVID
a diagnosis of long covid from my gp
In context ↗ - At worst: Severe
Now if I get out of the bath without help it's a good day.
In context ↗ - Now: No benefit
Im doing better emotionally, but same physically.
In context ↗ - Began after: COVID
I'll be 12 m in March
In context ↗
Read from 10 of their posts and comments; links to the 8 this page draws on
Summary
Eight months after COVID onset in March 2020, getting out of the bath without help was a good day. Fast or irregular heart rate, breathlessness, brain fog, nerve buzzing and near-total loss of taste persisted. Diagnosed with depression, PTSD and pericarditis, they were on mirtazapine and in therapy; by August 2021, about 17 months in, they were better emotionally but the same physically.
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What they tried
Also tried
Their words about each treatment
- Mirtazapine · Helped
Im now taking antidepressants (mirtazapine) and feeling much better.
In context ↗ - talking therapy · Helped
the therapy of course, I can't recommend talking enough!
In context ↗ - waves visualisation, grounding and box breathing · Helped
Grounding and box breathing also work well for me.
In context ↗ - Diclofenac (anti-inflammatory meds) · No change
I was anti-inflammatory meds for 3 months, I felt no change to other symptoms.
In context ↗ - Gaviscon · Not said
150mg diclofenac and 40ml acid suppressant Gaviscon. It's been 2 weeks so hard to tell any difference atm.
In context ↗ - surgical socks · Helped
Surgical socks help me, I don't wear them all the time, just when it's bad.
In context ↗ - distraction techniques · Helped
this is what works for me
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 8 months after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| March 2020 | COVID-19 infectionI'll be 12 m in MarchIn context ↗ | Not stated | |
| November 2020 | needed help getting out of the bathNow if I get out of the bath without help it's a good day.In context ↗ | Severe | |
| March 2021 | mood lifted on mirtazapine and distraction techniquesIm now taking antidepressants (mirtazapine) and feeling much better.In context ↗ | Not stated | Mirtazapine (Remeron) |
| August 2021 | better emotionally, physically unchanged while having testsIm doing better emotionally, but same physically.In context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Anxiety & low mood
I was diagnosed with depression in May and ptsd in Nov
In context ↗ - Brain fog
I still have brain fog and other symptoms heart and respiratory related.
In context ↗ - Heart symptoms & palpitations
Fast/irregular heart
In context ↗ - Breathlessness
I'm recovering with cf,hr/sob issues, brain fog and nerve issues.
In context ↗ - Neuropathy & tingling
Constant buzzing from My toes to my knees and hands to elbows!
In context ↗ - Loss of smell or taste
next to zero taste
In context ↗