Long COVID
Severe → somewhat betterIll 4.5 years before improving or writing
Long COVID, unable to work or drive, somewhat better on carnivore diet
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 4.5 years
- Last post
- Apr 2026
In their words
- Condition: Long COVID
I've had Long Covid for almost 4 years (from infection, no vax).
In context ↗ - At worst: Severe
Chronically fatigued with no restorative sleep, spend majority of my day sitting or lying down. Not able to exercise or exert myself. Can not work a job, drive a car, etc.
In context ↗ - Now: Somewhat better
This diet led to small improvements in fatigue levels and reduced my nerve pain by 50%. I'm still very ill and can not function normally.
In context ↗ - Began after: COVID
I've had Long Covid for almost 4 years (from infection, no vax)
In context ↗ - Says they never had: Brain fog
I never have brain fog or headaches
- Says they never had: Headaches & migraine
I never have brain fog or headaches
Read from 17 of their posts and comments; links to the 14 this page draws on
Summary
Bea, a 26-year-old woman, developed long COVID from an infection around 2021. Four years on she was mostly sitting or lying down, unable to work or drive, with constant panic, chronic fatigue, unrefreshing sleep, air hunger and nerve pain down her left arm. A carnivore diet gave small gains in fatigue and halved the nerve pain, but she remained very ill, and probiotics and supplements repeatedly made her worse.
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What they tried
What they credit
Also tried
Nystatin· No changebiofilm buster· No changeherbal protocols· No changeIvermectin· No changebinders· No changeClaritin, Zyrtec, Benadryl· No changeClaritin, Zyrtec, Benadryl· No changeClaritin, Zyrtec, Benadryl· No changeniacinamide· No changebeef kidney pills for DAO· No changeCell Salts· No changestinging nettle as a strong tea· No changebenfotiamine and thiamine HCL· Worseprobiotics (Lifted Naturals Mood Super Strains, Custom Probiotics D-Lactate Free, B. longum BB536, L. reuteri, S. boulardii)· Worsefermented foods (kefir, sauerkraut)· Worsequercetin· WorseAugmented NAC· Worsemagnesium· Not saidvery restricted low histamine diet· Not said
Their words about each treatment
- Nystatin · No change
I tried Nystatin, biofilm buster and herbal protocols back then with no success.
In context ↗ - Ivermectin · No change
I'm 10 days into taking Ivermectin with not much improvement.
In context ↗ - carnivore diet · Helped
This diet led to small improvements in fatigue levels and reduced my nerve pain by 50%.
In context ↗ - benfotiamine and thiamine HCL · Worse
I tried it for a month both benfothiamine and thiamine hcl, no improvements. It made me feel worse the whole time.
In context ↗ - magnesium · Not said
Magnesium is another crucial one, but I've tried supplementing that a lot in the past.
In context ↗ - probiotics (Lifted Naturals Mood Super Strains, Custom Probiotics D-Lactate Free, B. longum BB536, L. reuteri, S. boulardii) · Worse
I tried pushing through the probiotics for months, the herx never got better
In context ↗ - fermented foods (kefir, sauerkraut) · Worse
I can not tolerate any fermented foods (kefir, sauerkraut, etc.) they increase my symptoms even with a tiny dose.
In context ↗ - binders · No change
Binders do not help.
In context ↗ - Claritin, Zyrtec, Benadryl · No change
I have tried antihistamines (claratin, zyrtec, benadryl) no change in symptoms.
In context ↗ - niacinamide · No change
So far no side effects, not noticing any benefits yet either.
In context ↗ - beef kidney pills for DAO · No change
The DAO pills didn't help either.
In context ↗ - Cell Salts · No change
No improvements yet but no bad reactions either. Only been trialing them for two weeks so far.
In context ↗ - quercetin · Worse
My doctor wants me to take it but every time I try, it makes me feel unwell.
In context ↗ - stinging nettle as a strong tea · No change
I have tried quercetin supplements and stinging nettle as a strong tea. Also I tried DAO from beef kidney. No improvements.
In context ↗ - very restricted low histamine diet · Not said
I'm only on Zyrtec right now with a very restricted low histamine diet.
In context ↗ - Augmented NAC · Worse
I tried taking it for a full month, unfortunately I kept reacting to it and having to take days off.
In context ↗
Approaches: Diet
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2021 | Long COVID after infectionI've had Long Covid for almost 4 years (from infection, no vax)In context ↗ | Not stated | |
| 2024 | carnivore diet brought small gains in fatigue and halved nerve painThis diet led to small improvements in fatigue levels and reduced my nerve pain by 50%.In context ↗ | Severe | Carnivore diet |
| 2025 | constant bloating after trying to reintroduce plant foodsMy last attempt trying to introduce small amount of plant foods has created a constant bloated feeling in my stomach I never had beforeIn context ↗ | Severe | |
| 2026-04-09 | still very ill, trialling supplements without successI'm still very ill and can not function normally.In context ↗ | Severe |
Adverse events
- Probiotics and fermented foods“I tried one capsule and it caused major fatigue, brain fog, headache and increased other symptoms.” In context ↗ Made symptoms worse
- Probiotics and fermented foods“I can not tolerate any fermented foods (kefir, sauerkraut, etc.) they increase my symptoms even with a tiny dose.” In context ↗ Made symptoms worse
- Thiamine / benfotiamine“I tried it for a month both benfothiamine and thiamine hcl, no improvements. It made me feel worse the whole time.” In context ↗ Made symptoms worse
- Probiotics and fermented foods“I tried pushing through the probiotics for months, the herx never got better and I would get a horrible herx from the tiniest bit of probiotic powder.” In context ↗ Made symptoms worse
- Probiotics and fermented foods“I tried probiotics for 90 days, no improvements and I could never increase the dose without feeling incredibly ill.” In context ↗ Made symptoms worse
- Probiotics and fermented foods“I have tried to add in probiotics and I have horrible reactions (intense headache, feeling like I have a flu, brain fog, can't get out of bed).” In context ↗ Made symptoms worse
- Probiotics and fermented foods“I can't even tolerate the most microscopic bit of it without major flares in symptoms for 2 to 3 days after.” In context ↗ Made symptoms worse
- Baicalein and quercetin“My doctor wants me to take it but every time I try, it makes me feel unwell.” In context ↗ Made symptoms worse
- NAC (N-acetylcysteine)“I tried taking it for a full month, unfortunately I kept reacting to it and having to take days off.” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBreathlessnessGut problemsHeart symptoms & palpitationsNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaSleep problemsTemperature regulation
Their words about their symptoms
- Anxiety & low mood
I've had this awful feeling of panic/anxiety as my worst long covid symptom for multiple years.
In context ↗ - Heart symptoms & palpitations
It comes with heart palpitations, feeling lightheaded, air hunger, hot flashes.
In context ↗ - POTS & dysautonomia
I have very chronic fatigue, dysautonomia, panic attack/anxiety issues
In context ↗ - Breathlessness
Also wake up feeling like I can't breathe.
In context ↗ - Sleep problems
Chronically fatigued with no restorative sleep
In context ↗ - Neuropathy & tingling
hands, feet and mouth/tongue tingling and feeling partially numb
In context ↗ - Pain & fibromyalgia
I often wake up with intense cramping in extremities
In context ↗ - Temperature regulation
basically no tolerance for any stress without heart palpitations, sweating, hot flashes
In context ↗ - Gut problems
has created a constant bloated feeling in my stomach I never had before left of belly button and occasional burning
In context ↗
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