Pain and thinking exhaustion with ME/CFS, now somewhat better with calm slow games
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Jul 2026
In their words
- Condition: ME/CFS
with CFS, A LOT falls into that first category
In context ↗ - At worst: Moderate
dealing with not being able to do much of anything beyond sitting and recovering
In context ↗ - Now: Somewhat better
I have even managed to build up more endurance in terms of focusing and concentrating ... I'm now able to play these more complex games for longer
In context ↗
Summary
A Reddit user in an ME/CFS forum who describes pain, exhaustion from thinking, and a day spent sitting and staring into space, and takes Midodrine, which they said stopped them lying down. Over about a year they built up from short sessions of calm, slow games to longer, more complex ones, which they say distracted from the pain and improved their focus and concentration. They describe not being able to do much beyond sitting and recovering.
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What they tried
Also tried
Their words about each treatment
- Midodrine · Not said
and Midodrine wasn't allowing me to lie down
In context ↗ - playing games · Helped
It's helped tremendously to engage my ADHD brain, distract from the pain ... I have even managed to build up more endurance in terms of focusing and concentrating
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2025 | Could only play calm, slow games in short sessions; limited thinking staminaI've been only able to play relatively calm, slow paced cozy games a year ago and only very short sessions of creative management builders or anything that requires me to think about thingsIn context ↗ | Moderate |
| 2026-07-03 | Built up concentration and can play more complex games for longerI have even managed to build up more endurance in terms of focusing and concentrating ... I'm now able to play these more complex games for longerIn context ↗ | Moderate |
Adverse events
- Midodrine“Midodrine wasn't allowing me to lie down” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
thinking about what I could do for fun was too exhausting
In context ↗ - Pain & fibromyalgia
distract from the pain
In context ↗