Long COVID with brain fog, fatigue and pain, somewhat better with methylprednisolone
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 3.5 years
- Last post
- Jul 2023
In their words
- Condition: Long COVID
Got Covid March 2020 and again in August 2020 that’s when things really hit.
In context ↗ - Now: Somewhat better
I will say some things have SLOWLY improved.
In context ↗ - Began after: COVID
Got Covid March 2020 and again in August 2020 that’s when things really hit
Summary
A COVID-19 infection in March 2020, repeated in August 2020 when symptoms hit hardest, left them feeling as if they had slept for two years, with brain fog, fatigue, pain, muscle weakness, twitching and buzzing in the legs. By July 2023 some symptoms had slowly improved; they credited methylprednisolone, Claritin, CBD, melatonin, magnesium and potassium. A seizure medication taken at night helped with neuropathic pain.
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What they tried
What they credit
Also tried
Their words about each treatment
- methylprednisolone · Helped
Things that helped me…
In context ↗ - seizure med · Helped
I have a seizure med I take at night that seems to settle down
In context ↗
Approaches: H1 antihistamines · Other drugs and medicines · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 5 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| March 2020 | first COVID-19 infectionGot Covid March 2020In context ↗ | Not stated |
| August 2020 | second COVID-19 infection; symptoms hit hardestagain in August 2020 that’s when things really hitIn context ↗ | Moderate |
| July 2023 | some symptoms slowly improvedI will say some things have SLOWLY improved.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Brain fog
Brain fog, fatigue, pain, muscle weakness & twitching
In context ↗ - Pain & fibromyalgia
pain, muscle weakness & twitching
In context ↗ - Muscle weakness
muscle weakness & twitching
In context ↗ - Neuropathy & tingling
weird buzzing feeling (mostly in legs)
In context ↗
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