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Long COVID Severe → relapsedIll 4 years before improving or writing

Bedridden with long COVID, improved on H. pylori triple therapy and diet then relapsed

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
4 years
Last post
Jan 2024
In their words
  • Condition: Long COVIDI find myself wondering if there is a deeper understanding of these symptoms and their connection to long COVID. In context ↗
  • At worst: SevereI was bedridden ... Simple tasks such as going to the bathroom would leave me weak and exhausted. In context ↗
  • Now: RelapsedHowever, on Christmas Eve, my wife and I tested positive for COVID-19. ... I have been and still am seriously unwell. In context ↗
  • Began after: COVIDI contracted an unknown illness that drastically impacted my health ... that I believe was Covid
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

A person traveling through South Africa fell ill in March 2020, believing it was COVID-19, and was bedridden with overwhelming fatigue, concentration and vision problems. About eight months in, H. pylori triple therapy brought them to 80%, then a low-histamine anti-inflammatory diet with gradually increased activity took them to near 100%. A COVID-19 reinfection on Christmas Eve 2023 left them seriously unwell again with cough, breathlessness and bone-crushing fatigue.

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What they tried

Their words about each treatment
  • Triple Therapy · Helped a lotI completed the triple therapy treatment, which provided some improvement in most of my symptoms ... I would say it got me to 80% immediately after completing treatment In context ↗
  • low histamine anti-inflammatory diet · Helped a lotThis approach proved to be a game changer, as I noticed daily improvements that had brought me to near 100%. In context ↗
  • gradually increased my activity levels · Helpedgradually increased my activity levels over time ... This approach proved to be a game changer In context ↗

Approaches: Antibiotics · Diet · Physiotherapy and rehab

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
March 2020unknown illness, believed to be COVID-19, while travelling; bedriddenI was bedridden and experienced unusual symptoms that I believe was Covid. In context ↗Severe
—passed out 300 m into a runI passed out on a patch of grass just 300 meters away. In context ↗Severe
about 8 months into illnessH. pylori triple therapy, reached 80%I would say it got me to 80% immediately after completing treatment In context ↗MildAntibiotics (unspecified)
roughly 14 months into illnesslow-histamine anti-inflammatory diet plus gradually increased activity, near 100%This approach proved to be a game changer, as I noticed daily improvements that had brought me to near 100%. In context ↗Near normalLow-histamine diet
December 1st, 2023near-perfect health, gym three to four days a week and hikingI regularly went to the gym three to four days a week and engaged in various physical activities, such as hiking. In context ↗Near normal
Christmas Eve 2023COVID-19 reinfectionon Christmas Eve, my wife and I tested positive for COVID-19 In context ↗Severe
January 2024still seriously unwell after reinfectionI have been and still am seriously unwell. In context ↗Severe

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseAny activity I attempt leaves me extremely drained In context ↗
  • Muscle weaknessmaking it difficult to even get out of bed In context ↗
  • Brain fogcouldn’t look at a screen or concentrate for any period of time In context ↗
  • Vision problemsI had some vision issues In context ↗
  • Sleep problemsI struggled to sleep In context ↗
  • Breathlessnessa persistent cough and shortness of breath In context ↗
  • POTS & dysautonomiaI passed out on a patch of grass just 300 meters away In context ↗
  • Mast cell (MCAS) & allergiesthe recurrence of caffeine intolerance, fatigue, and flushed face when overexerting myself In context ↗

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