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Long COVID Moderate → somewhat betterNeeds ongoing treatment

Long COVID with panic attacks and 30-foot walking, somewhat better on Cipralex

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
Not stated
Last post
Jun 2023
In their words
  • Condition: Long COVIDBecause pre long Covid knowledge I was categorized as anxiety etc like everyone else. In context ↗
  • At worst: ModerateI’ve been off work since September 2022. ... If I go out for errands I find I can last 30 maybe 60 minutes before issues start getting too much. In context ↗
  • Now: Somewhat betterWent back on it and instantly went back to feeling capable of daily things again. In context ↗
  • Began after: a vaccinationI got sick from my second Moderna vaccine.
Read from 6 of their posts and comments; links to the 5 this page draws on

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Summary

Cove 91155 fell ill after a second Moderna vaccine and unravelled months later, going off work in September 2022; by October-November they had weekly dissociation and panic attacks. In February 2023 errands exhausted them within 30-60 minutes, and at one point a two-week stretch left them walking only about thirty feet. Restarting Cipralex/Lexapro restored their ability to manage daily things; without it they would be bedridden.

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What they tried

Their words about each treatment
  • Smoking pot (legal) · WorseSmoking pot (legal) made me have bad disassociation/derealization. Bad bad. So I stopped and I haven’t had any issues. In context ↗
  • B50 complex · HelpedI take a B50 complex and it gave me a bit more energy. In context ↗
  • Cipralex/Lexapro · Helped a lotThe best thing for me was when I was prescribed Cipralex/Lexapro. ... If I didn’t have it I would be bed ridden. In context ↗
  • Orange Triad multivitamin · Not saidGOOD multivitamin (I like Orange Triad from my lifting days) In context ↗
  • Omega 3 · Not saidGOOD Omega 3 and take 3-4 a day. In context ↗
  • Vitamin D · Not saidVitamin D because you probably need it In context ↗
  • Turmeric · Not saidTurmeric for inflammation. In context ↗
  • Apple cider vinegar · Not saidApple cider vinegar, I take it in powder tablets because I don’t like vinegar taste. In context ↗
  • Ginkgo Biloba · Not saidGinkgo Biloba. This is a new one for me I’m trying. In context ↗
  • Lions mane mushroom · Not saidLions mane mushroom for brain stuff aswell In context ↗
  • Quercetin · Not saidQuercetin for antioxidant. I kind of just take that random. In context ↗

Approaches: SSRIs

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
onsetfell ill after second Moderna vaccineI got sick from my second Moderna vaccine. Then months later everything unravelled. In context ↗Not stated
September 2022illness unravelled and they stopped workingI’ve been off work since September 2022. I got sick from my second Moderna vaccine. Then months later everything unravelled. In context ↗Moderate
October/November 2022peak of weekly dissociation and panic attacksI feel like it peaked in October/November with weekly (atleast) disassociation and panic attacks. In context ↗Moderate
—two-week stretch able to walk only about thirty feet outsideThere was even a two week stretch where I could only maybe get thirty feet outside before needing to go back home (apartment building). In context ↗Severe
February 2023up to four days a week feeling reasonableIt seemed like I was going from maybe one day a week feeling half way towards progress (which felt amazing) to now I might get four days (that’s my record!) of feeling actually reasonable. In context ↗Moderate
June 2023back on Cipralex/Lexapro, capable of daily things againWent back on it and instantly went back to feeling capable of daily things again. In context ↗ModerateEscitalopram (Lexapro)

Symptoms mentioned

Their words about their symptoms
  • Brain fogComplete brain fog and memory is non existent. In context ↗
  • Neuropathy & tinglingMuscle twitching. Lack of coordination. In context ↗
  • Heart symptoms & palpitationsFelt like a torn muscle between my ribs, but it would spasm occasionally as well. It went away after two months for me. In context ↗
  • Sleep problemsI was woken up at 0230 after laying down at 2300 In context ↗
  • Anxiety & low moodweekly (atleast) disassociation and panic attacks In context ↗

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