Long COVID with heart-rate spikes to 180, now leaps and bounds better after salt and rest
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 1 year
- Last post
- Aug 2023
In their words
- Condition: Long COVID
Long COVID is still poorly understood, and research into treatments is in its infancy.
In context ↗ - Now: Much better
It's still rough for me, but on average I'm leaps and bounds better than when I started.
In context ↗ - Began after: COVID
Long COVID is still poorly understood, and research into treatments is in its infancy.
In context ↗
Read from 6 of their posts and comments; links to the 5 this page draws on
Summary
Nightjar 66880 became ill with long COVID and spent nearly a year troubleshooting before finding relief. Midodrine, salt and electrolytes, hydration, daily compression and rest made the biggest difference, with atenolol later curbing heart-rate spikes that had reached 180 on standing; meditation, breathing exercises, ginger, acupressure and caffeine helped a symptom. They said they were still rough but leaps and bounds better than at the start.
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What they tried
What they credit
Their words about each treatment
- midodrine · Helped a lot
it's been a combination of midodrine, salt/electrolytes, hydration, daily compression wear, and rest that have made the biggest difference
In context ↗ - exercise (specifically horizontal exercise, with the CHOP method) · Helped
I've also seen some improvement with exercise (specifically horizontal exercise, with the CHOP method)
In context ↗ - meditation and breathing exercises · Helped
What has helped me manage stress the most is regular meditation and nervous system/vagus nerve stimulation
In context ↗ - ginger · Helped
ginger helps with my nausea/stomach pain
In context ↗ - acupressure · Helped
acupressure helps with sleeping through the night
In context ↗ - caffeine · Helped
caffeine helps my headaches and reduces the brain fog
In context ↗ - beta blockers (atenolol) · Helped
just beta blockers at first but they had bad side effects for me, and have now settled on atenolol to bring my HR down
In context ↗
Approaches: POTS medication · Alternative therapies · Beta-blockers · Mind-body practices · Other drugs and medicines · Pacing · Physiotherapy and rehab · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The first step with a time is 11 months after onset: the story doesn’t say how ill they were before that. The dashed part: the story doesn’t say when. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | became ill with long COVIDLong COVID is still poorly understood, and research into treatments is in its infancy.In context ↗ | Not stated | |
| 2022-2023 | life lost to POTS symptoms before treatmentFor some, midodrine is horrible, but it gave me my life back.In context ↗ | Moderate | |
| 2023-07-30 | biggest difference from midodrine, salt, hydration, compression and restfor me it's been a combination of midodrine, salt/electrolytes, hydration, daily compression wear, and rest that have made the biggest differenceIn context ↗ | Mild | Midodrine |
| 2023-08-09 | atenolol plus midodrine brought heart rate and other symptoms downIt's been a marked improvement - my HR still spikes but not nearly as badly (up to 110 when standing instead of 180), and most of my other symptoms are reduced as well.In context ↗ | Mild | Atenolol (Tenormin) |
Adverse events
- Atenolol (Tenormin)“Most beta blockers make me worse and give me horrible nausea” In context ↗ Made symptoms worse
- Atenolol (Tenormin)“Most beta blockers make me worse and give me horrible nausea” In context ↗ Gut side effects
- Atenolol (Tenormin)“Some actually made my stress levels skyrocket because it felt like my body/brain was fighting itself, which then sent my anxiety flaring constantly.” In context ↗ Mood or psychiatric effects
- Atenolol (Tenormin)“just beta blockers at first but they had bad side effects for me” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
For me fatigue is part of POTS
In context ↗ - Heart symptoms & palpitations
my HR still spikes but not nearly as badly
In context ↗ - Brain fog
caffeine helps my headaches and reduces the brain fog
In context ↗ - Headaches & migraine
caffeine helps my headaches
In context ↗ - Gut problems
ginger helps with my nausea/stomach pain
In context ↗ - Sleep problems
acupressure helps with sleeping through the night
In context ↗ - Anxiety & low mood
which then sent my anxiety flaring constantly
In context ↗
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