Long COVID
Severe → much betterIll 2 years before improving or writing
Bedridden for weeks with long COVID, now much better after Chinese herbs and acupuncture
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2 years
- Last post
- Sep 2024
In their words
- Condition: Long COVID
I’m a little over 3 months into long hauling.
In context ↗ - At worst: Severe
Spent 8 weeks bedridden, and took 4 trips to the ER.
In context ↗ - Now: Much better
I’m not perfect but it’s night and day.
In context ↗ - Began after: COVID
So I tested positive April 7th.
Read from 41 of their posts and comments; links to the 25 this page draws on
Summary
She caught COVID in April 2021 and was bedridden for weeks with heart rate reaching 170, gut problems and fatigue. Beta blockers, hydration tablets, turmeric and clean eating brought slow gains; she stopped beta blockers after seven months. A five-day hospital stay in late 2023 led her to a Chinese medicine doctor, whose herbs, acupuncture and diet advice left her night and day better, though still not perfect.
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What they tried
What they credit
Also tried
vitamins from Chinese medicine doctor· Helped a lotblood pressure meds and potassium and fluids· Helpedimmune support vitamins· Helpedmatcha green tea· Helpedcollagen· Helpedtumeric gummy / Qunol tumeric capsules· Helpedmiralax· Helped · wore offsenna plus· Helped · wore offchamomile tea and high fiber diet· No changesecond Pfizer vaccine· Worsenutriox treatment· Not saidorganic biotin supplement· Not saidhair skin and nail supplement· Not saidClaritin· Not saidgreens tablets· Not saidSSRI meds (fluoxetine)· Not saidweights and light workouts· Not said
Their words about each treatment
- beta blockers · Helped
The beta blockers make me tired and upset my stomach but it’s the only thing that keeps me out of the hospital
In context ↗ - blood pressure meds and potassium and fluids · Helped
Got blood pressure meds and potassium and fluids and it slowed down.
In context ↗ - clean eating / cutting out foods · Helped
Clean eating helped too when I didn’t eat right I felt it
In context ↗ - adaptogen mushroom powder · Helped
What really helped me as I feel like I’m slowly getting better was taking adaptogen (pretty sure I spelled that wrong) mushroom powder that is organic and anti inflammatory.
In context ↗ - immune support vitamins · Helped
Also immune support vitamins and matcha green tea lately.
In context ↗ - nutriox treatment · Not said
I use the shampoo and conditioner each wash I try to go a few days between washes and then I use the spray 2 times a day on dry scalp.
In context ↗ - organic biotin supplement · Not said
I’m on a nutriox treatment and taking an organic biotin supplement to try and counteract.
In context ↗ - hair skin and nail supplement · Not said
I also took a hair skin and nail supplement
In context ↗ - collagen · Helped
what seemed to work the best was collagen. I’ve been doing collagen for 3 weeks and the shedding started slowing when I started taking that.
In context ↗ - Claritin · Not said
I am taking Claritin but maybe I need to do that daily?
In context ↗ - hydration tablets (nuun) · Helped
I used Qunol tumeric capsules and just the nuun hydration tablets. They don’t taste the best but it works.
In context ↗ - greens tablets · Not said
my family got me some greens tablets
In context ↗ - second Pfizer vaccine · Worse
I had my second Pfizer vaccine almost 72 hours ago and I feel so heavy and fatigued.
In context ↗ - miralax · Helped
I’ve tried miralax and senna plus which worked for a week but now I’m just not going at all
In context ↗ - chamomile tea and high fiber diet · No change
I’m taking tumeric and drinking chamomile and eating high fiber and all that stuff along with staying hydrated and nothing works.
In context ↗ - SSRI meds (fluoxetine) · Not said
I started SSRI meds bc the long haul stuff has been hard for me
In context ↗ - weights and light workouts · Not said
now I do 30 mins of Weights and I’m done for
In context ↗ - acupuncture · Helped a lot
gave me acupuncture and herbs and vitamins and I’m not perfect but it’s night and day
In context ↗
Approaches: POTS medication · Alternative therapies · Beta-blockers · Diet · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| April 2021 | COVID-19; bedridden with tachycardia up to 170 in bedI’m pretty much bedridden due to the tachycardia issues. I haven’t been able to work and barely can take care of my kids.In context ↗ | Severe | |
| 2021-05-12 | able to slowly get back to light workouts and daily tasksFinally starting to recover. Still on beta blockers but able to slowly get back to light workouts and able to get through my daily tasks a bit better.In context ↗ | Moderate | Beta-blockers (unspecified) |
| 2021-06-22 | completed a 7 mile bike rideI am 3 months out and just completed a 7 mile bike ride today.In context ↗ | Mild | Beta-blockers (unspecified) |
| 2021-06-29 | backslide after second Pfizer vaccineI just got my second vaccine and it feels like I went backwards.In context ↗ | Mild | |
| 2021-07-02 | push mowed the yard with only a few hours of fatigueI push mowed my yard yesterday and only had fatigue for a few hours. I didn’t have any racing heart issues or anything.In context ↗ | Mild | |
| 2021-08-04 | energy back a little, gut a little betterI am slowly getting better I have my energy back a little and my gut is a little better.In context ↗ | Mild | |
| 2021-11-11 | off beta blockers, stomach much betterI am feeling much better. Still have days of mental fog and a little bit of palpitations but I’m off beta blockers and my stomach is much much better these days.In context ↗ | Mild | Beta-blockers (unspecified) |
| 2022-02-24 | back to herself for the most partLoads better. I ended up on beta blockers for 7 months but I’m back to myself for the most part.In context ↗ | Near normal | Beta-blockers (unspecified) |
| 2022-05-17 | better than a year ago but still brain fog, bloating and tachycardiaI just weaned myself off the fluoxetine and beta blockers and I’m way better than I was a year ago but I am not the same person I was pre CovidIn context ↗ | Mild | |
| 2022-06-09 | two-week gut flare with bloatingaside from that the last two weeks I’m in some sort of flare and I’m miserableIn context ↗ | Mild | |
| 2023-03-07 | 99% better after about a year on beta blockersUnfortunately it took a good year before I could stop taking beta blockers and now I’m 2 years out and still slightly not the same. I’m like 99% better nowIn context ↗ | Near normal | Beta-blockers (unspecified) |
| November 2023 | hospitalised five days for high heart rate; sick 15-20 days a month, bedridden 5I got hospitalized November last year for high heart rate again for 5 days ... I was literally sick 15-20 days a month and bedridden for at least 5 of those.In context ↗ | Severe | |
| 2024-09-11 | Chinese medicine diet advice, acupuncture, herbs and vitamins; night and day better but not perfectI’m not perfect but it’s night and day. My body is getting more balanced over timeIn context ↗ | Mild | Chinese herbal medicine (TCM formulas) |
Adverse events
- Beta-blockers (unspecified)“The beta blockers make me tired and upset my stomach” In context ↗ Side effects
- Beta-blockers (unspecified)“I got really dizzy when I first started mine.” In context ↗ Low blood pressure or fainting
- Beta-blockers (unspecified)“Also my appetite has been through the roof” In context ↗ Side effects
- COVID vaccination as treatment“I had my second Pfizer vaccine almost 72 hours ago and I feel so heavy and fatigued. ... I had some pretty bad body aches the first night.” In context ↗ Made symptoms worse
- COVID vaccination as treatment“It was getting better slowly then I got the vaccine and I’m peeing constantly again.” In context ↗ Other
Symptoms mentioned
Anxiety & low moodBrain fogFlu-like symptomsGut problemsHair lossHeadaches & migraineHeart symptoms & palpitationsNeuropathy & tinglingPOTS & dysautonomiaPost-exertional malaise
Their words about their symptoms
- Heart symptoms & palpitations
I still get a pounding heart when i eat or drink too much and when it’s really hot out and im in the sun.
In context ↗ - Post-exertional malaise
I have a few setbacks when I’m exhausted but nothing compared to before.
In context ↗ - Gut problems
Horrible bloating that never goes away(seeing a doctor soon)
In context ↗ - Brain fog
Still have days of mental fog and a little bit of palpitations
In context ↗ - Hair loss
But my hair is falling out so much.
In context ↗ - Headaches & migraine
Actually woke up today with a horrible migraine
In context ↗ - Neuropathy & tingling
Tingling hands and feet occasionally
In context ↗ - Anxiety & low mood
I’m honestly angry and depressed and anxious that I can’t.
In context ↗ - Flu-like symptoms
I had a bad sore throat
In context ↗ - POTS & dysautonomia
I get dizzy when I stand and I get tachycardia
In context ↗
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