Long COVID with POTS and brain fog, back to normal after antihistamines and low-histamine diet
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 5 months
- Last post
- Jan 2025
In their words
- At worst: Severe
I couldn’t function. I couldn’t drive, I couldn’t stay awake for more than a few hours, I couldn’t stand without almost passing out.
In context ↗ - Now: Recovered
I’m back to normal entirely now.
In context ↗
Read from 22 of their posts and comments; links to the 12 this page draws on
Summary
A mother of two young kids who used to be an athlete fell ill after a COVID infection in December 2020 and spent about five months with POTS, tachycardia, MCAS symptoms, brain fog and anxiety. She improved slowly, then woke on Mother's Day 2021 feeling near normal, crediting antihistamines, a probiotic, a low-histamine diet, rest and time. A Pfizer dose brought a wave of anxiety, but by 2022 she was 90-95% better and later said she was back to normal.
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What they tried
What they credit
Also tried
Their words about each treatment
- beta blockers · Helped
It did help my HR when it was the worst though so it was a little give and take.
In context ↗ - Zyrtec · Helped
the biggest leaps in recovery started coming when I finally overlapped Zyrtec, Pepcid, a strong probiotic, low histamine diet, and seriously prioritizing rest.
In context ↗ - Zinc · Worse
when I started getting constant headaches at the same time each day as a “new symptom” we were able to trouble shoot it together and I was taking way too much Zinc
In context ↗ - therapy · Not said
I also hemorrhaged money in to therapy to help manage anxiety
In context ↗ - supplements (unspecified) · Not said
I took a lot of supplements (and still do) but really thinking back, the things I listed above helped the most
In context ↗ - Buspirone · Helped
a very light Buspirone prescription to help get me going
In context ↗ - Xanax · Helped
half a Xanax for the really* bad days early on
In context ↗ - Pepcid · Helped
Then I’d take Pepcid at night before bed; this seemed to curb the HORRID nausea the next morning until I could wake up enough to manage it.
In context ↗ - a strong probiotic · Helped
My daily diet for MONTHS was Zyrtec and probiotic in the morning with a boiled egg or two to take the edge off the nausea.
In context ↗ - rest and limiting mental output · Helped
I would nap or just sit still whenever possible and really started prioritizing sleep, rest, and limiting mental output.
In context ↗ - water and Pedialyte powders · Helped
I chugged ridiculous amounts of water and Pedialyte powders which seemed to help my heart and blood pressure irregularities.
In context ↗ - 1:1 CBD THC edibles · Helped
Very low dose 1:1 CBD THC edibles helped on bad nausea/anxiety days.
In context ↗ - time · Helped
this is what did it for me aside from just time
In context ↗ - COVID vaccination as treatment · Not said
Today, day 15, I have had this wave of COVID anxiety I haven’t experienced in a few months. Absolutely debilitating anxiety.
In context ↗
Approaches: H1 antihistamines · H2 blockers · Benzodiazepines · Diet · Other drugs and medicines · Pacing · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2 months after onset: the story doesn’t say how ill they were before that. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| early 2021 | long haul: severe MCAS and POTS, could not function or stay awake for more than a few hoursI couldn’t function. I couldn’t drive, I couldn’t stay awake for more than a few hours, I couldn’t stand without almost passing out.In context ↗ | Severe | |
| Mother's Day 2021 | woke up feeling borderline normal after a slow, steady improvementThere was an incredibly* slow, although steady, improvement for a couple months. ... Then on Mother’s Day, I woke up feeling borderline normal and have remained so.In context ↗ | Near normal | Time and spontaneous remission |
| 2021-07-09 | wave of COVID anxiety 15 days after first Pfizer doseI have had this wave of COVID anxiety I haven’t experienced in a few months. Absolutely debilitating anxiety.In context ↗ | Mild | |
| 2022-01-02 | hit about 80-85% better overnight, then 90-95% a year inThen a switch flipped and I hit about 80-85% better over night. Now I’d say I’m 90-95% exactly a year in from my first infection.In context ↗ | Near normal | Time and spontaneous remission |
| 2022-07-03 | felt fully recovered for more than eight monthsI feel like have been fully recovered for 8+ months or so.In context ↗ | Recovered | Time and spontaneous remission |
| 2025-01-17 | back to normal entirelyI’m back to normal entirely now.In context ↗ | Recovered |
Adverse events
- Beta-blockers (unspecified)“I also felt exhausted and faint from them at first until we worked out the dose and timing of dose to what worked best.” In context ↗ Side effects
- Beta-blockers (unspecified)“At one point I was taking 25 mg extended release 2x day but that was too much I felt tired and light headed.” In context ↗ Side effects
- Beta-blockers (unspecified)“After a while, they weren’t lowering my HR to normal, they were dropping it below normal.” In context ↗ Heart rhythm problems
- Zinc“I started getting constant headaches at the same time each day as a “new symptom” ... I was taking way too much Zinc” In context ↗ Side effects
- COVID vaccination as treatment“Today, day 15, I have had this wave of COVID anxiety I haven’t experienced in a few months. Absolutely debilitating anxiety.” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
disorientation with movement like in the car, and brain fog
In context ↗ - POTS & dysautonomia
I couldn’t stand without almost passing out
In context ↗ - Mast cell (MCAS) & allergies
some serious food Intolerances like chocolate and alcohol which cause all of those symptoms x10
In context ↗ - Headaches & migraine
flares come with worsening exhaustion, dizziness, nausea, some SOB, headaches
In context ↗ - Gut problems
this seemed to curb the HORRID nausea the next morning
In context ↗ - Heart symptoms & palpitations
I constantly have tachycardia
In context ↗ - Anxiety & low mood
Absolutely debilitating anxiety.
In context ↗ - Temperature regulation
Night sweats have started in the past couple weeks.
In context ↗ - Pain & fibromyalgia
Aches and chills are hit or miss.
In context ↗
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