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Long COVID Moderate → much betterIll 3.5 years before improving or writingNeeds ongoing treatment

Long COVID dizziness, tinnitus and twitches, much better with fexofenadine and limited diet

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
3.5 years
Last post
Sep 2026
In their words
  • Condition: Long COVIDCovid Update ... Stressors in my life currently have brought my symptoms back tenfold. In context ↗
  • At worst: ModerateI get rest bite from hot baths. And sleeping the rest of the time it's annoying as hell. In context ↗
  • Now: Much betterI now eat a very strict didn't and most symptoms have gone ... And I feel better however restricted my diet has become. In context ↗
Read from 7 of their posts and comments; links to the 6 this page draws on

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Summary

Creek 82859, 35, caught covid in October and was left with dizziness and tinnitus. A second infection in March 2023 added vibrations and twitches. Stress brought symptoms back tenfold in September 2025, with brain fog, numbness, insomnia and palpitations. Fexofenadine and a very limited diet calmed the panic and palpitations; most symptoms later went, but allergy symptoms and a restricted diet remained.

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What they tried

Their words about each treatment
  • hot baths · HelpedStiff neck, random twitches. I get rest bite from hot baths. In context ↗
  • fexofenadine antihistamines · HelpedI take fexofenadine daily because I still have some allergy symptoms that I cannot explain In context ↗
  • very limited / strict diet · HelpedI now eat a very strict didn't and most symptoms have gone In context ↗

Approaches: Diet

Their path

Very severeSevereModerateMildNear normalRecovered12 mo2 y3 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 5 months after onset: the story doesn’t say how ill they were before that. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
March 2023second covid infection added internal shaking and tremor; sleeping most of the timeI am 35 and feel like 65 atm In context ↗Moderate
September 2025relapse after life stressors with brain fog, head pressure, numbness, insomnia and palpitationsStressors in my life currently have brought my symptoms back tenfold. In context ↗Moderate
March 2026panic attacks and palpitations calmed on fexofenadine and a very limited dietthese panic attacks/palpitations have calmed down significantly In context ↗MildFexofenadine (Allegra)
September 2026most symptoms gone on a strict diet and daily fexofenadine; allergy symptoms and flares remainI now eat a very strict didn't and most symptoms have gone. In context ↗MildFexofenadine (Allegra)

Symptoms mentioned

Their words about their symptoms
  • Tinnitusit's just the vibrations and the tinnitus? That's driving me insane. In context ↗
  • Sleep problemsAnd sleeping the rest of the time it's annoying as hell. In context ↗
  • Pain & fibromyalgiaStiff neck, random twitches. In context ↗
  • Brain fogBrain fog, pressure in the head, numbness and pins and needles in hands/feet insomnia. In context ↗
  • Neuropathy & tinglingnumbness and pins and needles in hands/feet In context ↗
  • Heart symptoms & palpitationsthese panic attacks/palpitations have calmed down significantly In context ↗
  • Anxiety & low moodI had the exact same symptoms anxiety, brain fog, fatigue In context ↗
  • Mast cell (MCAS) & allergiesI take fexofenadine daily because I still have some allergy symptoms that I cannot explain In context ↗

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