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Long COVID Severe → relapsedIll 4 months before improving or writing

Long COVID head pressure and palpitations, cleared for a while then back after exercise

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
4 months
Last post
Apr 2022
In their words
  • Condition: Long COVID4 months into long covid In context ↗
  • At worst: SevereI couldn’t sit or stand without passing out. In context ↗
  • Now: RelapsedI was prescribed antibiotics and I recovered fully. I felt great for awhile too. I made the mistake of working out and sent myself back. In context ↗
  • Began after: COVIDI got covid on Christmas 2021 and had very mild symptoms. In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

Four months after mild COVID-19 at Christmas 2021, she still had head pressure, tinnitus, palpitations, panic attacks and an inability to sweat. Early on she had episodes of passing out, a racing heart on standing and severe weakness; a strep infection was found and antibiotics cleared her symptoms for a while. Working out brought everything back.

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Asking aboutBreeze 69441’s story

What they tried

Their words about each treatment
  • Benadryl · Not saidI ran to take some Benadryl and could feel myself passing out. In context ↗
  • epi pen · Not saidMy husband used his epi pen on me and then I got cold and could breathe normally. In context ↗
  • antibiotics · Helped a lotI was prescribed antibiotics and I recovered fully. I felt great for awhile too. In context ↗
  • working out · Much worseI made the mistake of working out and sent myself back. In context ↗
  • electrolytes and water · No changeI have been drinking electrolytes and just a lot of water in general. But nothing seems to help me sweat In context ↗
  • Cannabis (THC, marijuana) · Not saidI smoked some marijuana ... I suddenly got anxious. My feet started twitching. In context ↗

Approaches: Antibiotics

Their path

Very severeSevereModerateMildNear normalRecoveredonset2.5 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
Christmas 2021mild COVID-19 with sinus symptoms and fatigueI got covid on Christmas 2021 and had very mild symptoms. In context ↗Mild
days after Christmas 2021panic, collapse, ER visit, could not eat or drink or stand without passing outI got super weak and I felt like I was going to die. He rushed me to the hospital and I had to have my head outside the window to keep myself conscious. In context ↗Severe
early 2022strep infection found and treated with antibiotics; full recovery for a whileI was prescribed antibiotics and I recovered fully. I felt great for awhile too. In context ↗RecoveredAntibiotics (unspecified)
early 2022crashed after working outI made the mistake of working out and sent myself back. In context ↗Moderate

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Temperature regulationUnable to sweat In context ↗
  • Heart symptoms & palpitationsOccasional palpitations In context ↗
  • Anxiety & low moodUncontrollable anxiety ... Extreme panic attacks In context ↗
  • Neuropathy & tinglingRandom muscle twitching ... The constant feeling of weird or unusual (probably nerve related) In context ↗
  • POTS & dysautonomiaEvery time i stood up my heart rate shot up to 130. And then I would feel myself getting dizzy. In context ↗
  • Light & noise sensitivityYes I have to wear sunglasses too! Like all the time. It helps me not get dizzy and disoriented In context ↗
  • Post-exertional malaiseI made the mistake of working out and sent myself back. In context ↗
  • Muscle weaknessI got super weak and I felt like I was going to die. In context ↗

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