Miruvor
Sign up
Condition not stated Mild → no benefitIll for 10 months

Months of missed school with headaches and breathlessness; Diacarb gave no benefit

Condition
Condition not stated
At worst
Mild (working or studying, with limits)
Ill for
10 months
Last post
Sep 2026
In their words
  • Condition: Condition not statedSorry for intruding without a diagnosis In context ↗
  • At worst: MildAfter going home from school, I end up feeling so tired that I can't do much more than either lay in bed or stare at my PC. In context ↗
  • Now: No benefitEver since I started going to school my symptoms like the headaches (onset immediately), shortness of breath (onset fairly quick) and the tiredness (which happens way later) have been getting worse. In context ↗
  • Began after: nothing they could nameI remember going to the gym late last year for a bit, sometimes I would run out of breath when doing exercises. In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

Request to remove this story

Summary

A 17-year-old who became breathless at the gym in late 2025 and then developed headaches after walking, followed by months of missed school and pain on walking. They describe headaches, dizziness, breathlessness, brain fog, unrefreshing sleep and neck and stomach pain, with symptoms worsening after school days, and suspect ME/CFS. Diacarb did not help. They have no diagnosis; a neurosurgeon called the pain psychosomatic.

Ask Miruvor AI

Asking aboutCove 84866’s story

What they tried

Also tried

Diacarb· No changegoing to the gym· Worse
Their words about each treatment
  • going to the gym · WorseI then started getting headaches after walking in general, suspiciously not long after starting the gym. I quit the gym. In context ↗
  • Diacarb · No changeStarted taking Diacarb. Should have eliminated the pain, but didn't. In context ↗

Their path

What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
late 2025breathless at the gym, then headaches after walkingI remember going to the gym late last year for a bit, sometimes I would run out of breath when doing exercises. In context ↗
late spring/early summer 2026missed many school lessons; pain on walkingLate spring/early summer I missed a lot of lessons at school. Didn't feel like I could walk without ending up in pain. In context ↗
summer 2026resting at home over the summerI never felt too bad in the summer, just staying at home all day, occasionally driving to doctors. In context ↗
September 2026symptoms worsening with school attendanceEver since I started going to school my symptoms like the headaches (onset immediately), shortness of breath (onset fairly quick) and the tiredness (which happens way later) have been getting worse. In context ↗

Symptoms mentioned

Their words about their symptoms
  • Headaches & migraineI then started getting headaches after walking in general In context ↗
  • BreathlessnessI end up also short of breath and somewhat dizzy In context ↗
  • Brain fogIt feels like I have brain fog and tiredness In context ↗
  • Post-exertional malaiseAfter going home from school, I end up feeling so tired that I can't do much more than either lay in bed or stare at my PC. In context ↗
  • Sleep problemsI do have unrefreshing sleep quite often. In context ↗
  • Pain & fibromyalgiaI often get neck pain too In context ↗
  • Gut problemsI have also had a lot of stomach pains and issues pretty much all my life In context ↗
  • Anxiety & low moodI think my psychological state has been getting way worse recently after getting no answers and continuing to live in pain. In context ↗

Ask Miruvor AI

Asking aboutCove 84866’s story

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime