Long COVID brain fog and crashes, nearly back to normal with quetiapine and thyroid meds
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 2 years
- Last post
- Mar 2025
In their words
- Condition: Long COVID
I have a Long-Covid diagnosis.
In context ↗ - At worst: Mild
I tried to work part time then slowly increase my work hours but was in tears daily.
In context ↗ - Now: Near normal
It took me 26 months to stop having post-covid syndrome issues. ... But yes, I still have flares at the base of my neck
- Began after: COVID
It came back much worse twelve weeks ago, when I contracted Covid.
In context ↗
Read from 23 of their posts and comments; links to the 17 this page draws on
Summary
Kestrel 37824 caught COVID in early 2022 and for months had constant brain fog, along with headaches, dizziness and fatigue, with unpredictable crashes after exertion and part-time work from home in tears. One 25 mg dose of quetiapine cleared the brain fog by the next day, and acupuncture eased headaches and tinnitus. Colds, food poisoning and allergy season each set them back weeks. Two thyroid dose increases helped, and by late 2024 they had largely recovered.
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What they tried
What they credit
Also tried
Their words about each treatment
- Hydroxyzine · Helped
Taking Hydroxyzine every night has helped.
In context ↗ - Quetiapine (Seroquel) · Helped a lot
tl;dr: Seroquel, Generic Name: Quetiapine. One dose knocked out the brain fog for me. It never came back.
In context ↗ - Cymbalta · Helped
I was on Cymbalta pre-covid from 2012-2019. In my opinion, it's the best anti-depressant.
In context ↗ - Warm liquids · Helped
Warm liquids knock mine down.
In context ↗ - Clonidine · Not said
Clonidine (what I typically take for my Night Terrors if they are happening long-term)
In context ↗ - Acupuncture · Helped a lot
Acupuncture has worked wonders for me post-covid.
In context ↗ - Thyroid medication · Helped
After getting Covid, I have needed to increase my thyroid dosage twice.
In context ↗ - Supplemental potassium · Helped
Adding supplemental potassium helps me endure the heat.
In context ↗ - Physical therapy · Not said
I still have flares at the base of my neck and continue in physical therapy.
In context ↗ - COVID vaccination as treatment · Not said
I already had Fibromyalgia but developed Costochondritis right after getting Vaccination #2. It gradually went away.
In context ↗
Approaches: Thyroid hormones
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| January 2022 | COVID-19 infectionIt came back much worse twelve weeks ago, when I contracted Covid.In context ↗ | Mild | |
| early 2022 | constant brain fog and headaches, working part time from home in tearsI tried to work part time then slowly increase my work hours but was in tears daily.In context ↗ | Mild | |
| April 2022 | tree pollen allergy flare with debilitating dizziness, thought it was COVID againhad a period of ten days where I thought I had Covid againIn context ↗ | Mild | |
| May 2022 | one dose of quetiapine cleared the brain fog for goodOne dose knocked out the brain fog for me. It never came back.In context ↗ | Mild | |
| June 2022 | acupuncture brought headaches and tinnitus down to a manageable levelAcupuncture has worked wonders for me post-covid. It really seems to get the headaches back to a manageable level.In context ↗ | Mild | |
| December 2022 | most long-COVID symptoms subsided and normal energy returnedEven when most of the long-covid symptoms have subsided, my normal balanced energy returnedIn context ↗ | Mild | |
| January 2023 | family cold exposure and food poisoning each flared symptoms like COVID againThen a family member had a cold and exposed me, and my symptoms blew up - it felt like I had covid again.In context ↗ | Mild | |
| April 2023 | needs forearm crutches and a walker on many daysI used a cane before I got covid and now I use forearm crutches and a walker on many daysIn context ↗ | Mild | |
| July 2024 | post-COVID syndrome issues finally stopped after 26 monthsIt took me 26 months to stop having post-covid syndrome issues.In context ↗ | Mild | |
| November 2024 | largely recovered, immune over-reaction gone but neck flares remainI have largely recovered and no longer have post-covid syndrome where my immune system freaks out.In context ↗ | Near normal | |
| March 2025 | two thyroid dose increases ended the heavy sick feelingTurns out, my Thyroid just could not bounce back and I needed to increase my dosage of Thyroid medications.In context ↗ | Near normal | Thyroid hormones (unspecified) |
Adverse events
- COVID vaccination as treatment“I already had Fibromyalgia but developed Costochondritis right after getting Vaccination #2. It gradually went away.” In context ↗ Autoimmune or inflammatory flare
- Quetiapine (Seroquel)“I woke the next day feeling my typical zombie-like I feel after taking it and by noon the drugged-out feeling had left as was typical.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
One dose knocked out the brain fog for me.
In context ↗ - Post-exertional malaise
intense fatigue with exertion
In context ↗ - POTS & dysautonomia
I have occasionally dizziness still
In context ↗ - Headaches & migraine
It really seems to get the headaches back to a manageable level.
In context ↗ - Tinnitus
The tinnitus now stays at a non-irritating level.
In context ↗ - Pain & fibromyalgia
I still have flares at the base of my neck
In context ↗ - Sleep problems
there are a couple medications I only take if Night Terrors are disrupting my sleep
In context ↗ - Temperature regulation
fever (sometimes)
In context ↗
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