Bedridden for four weeks with long COVID, much better with pacing and the Gupta Program
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 5 months
- Last post
- May 2024
In their words
- Condition: Long COVID
Caught Covid the 2nd time in december 2022 and developed LC mid january.
In context ↗ - At worst: Severe
I was bedridden for 4 weeks afterwards.
In context ↗ - Now: Much better
Still recovering but I’m a lot better.
In context ↗ - Began after: COVID
I triggered it after my second Covid infection due to lifechanging events & a lot of stress.
Read from 31 of their posts and comments; links to the 16 this page draws on
Summary
Wave 94340 developed long COVID in mid-January 2023 after a second COVID infection, with fatigue, palpitations, PEM, nerve and joint pain. They were bedridden for four weeks after moving to New York and reached a low point in June 2023, able to walk only once around the block. From mid-June they improved gradually, using the Gupta Program and pacing; by May 2024 they could dance for three hours and manage five-hour outings that included sitting, though still recovering.
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What they tried
What they credit
Also tried
Their words about each treatment
- beta blockers (Metoprolol) · Helped
I am currently taking beta blockers which are not typically pro-arrhytmic, but they calm my heart down a bit.
In context ↗ - energy budget · Helped
my worst symptoms (palpitations, flu like malaise, debilitating fatigue) don't appear if I keep to my (small) energy budget and do frequent stimuli breaks.
In context ↗ - Natto · Worse
I started taking Natto 500FU yesterday and experienced an increase of palpitations today.
In context ↗ - LDN · Helped
I also have a Dr who prescribed me LDN as I was diagnosed with Small Fiber Neuropathy ... I'm only at day 3 but I have the feeling it helps with the fatigue and makes me feel better.
In context ↗ - hydrating eye drops · No change
Went to an Optometrist, he checked everything and dismissed me with hydrating eye drops. They did not help btw.
In context ↗ - Lexapro · Helped
I took 1mg of Lexapro for a Brain MRI to manage procedure anxiety. ... while there's still fatigue, it's less noticeable and the hangover/malaise feeling is almost gone.
In context ↗ - increasing my walks week by week · Helped
I'm increasing my walks week by week (10 mins mid june, now I am at 28 mins) and I am getting energy back.
In context ↗ - Gupta Program · Helped
I have Long Covid and doing the Gupta Program which works with the same tools and has helped me a lot within the last 3 months.
In context ↗ - magnesium · No change
taking magnesium but they are still there
In context ↗ - Taurine · No change
magnesium, Taurine, no stimulants but nothing really helped
In context ↗ - cold showers · No change
I tried to manage them without any pills besides Metoprolol, e.g. cold showers, magnesium, Taurine, no stimulants but nothing really helped.
In context ↗
Approaches: Brain retraining · Pacing · Physiotherapy and rehab
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| mid-January 2023 | long COVID symptoms began after a second COVID infectionCaught Covid the 2nd time in december 2022 and developed LC mid january.In context ↗ | |
| February 2023 | moved to NYC, worsened and was bedridden for four weeksI was bedridden for 4 weeks afterwards.In context ↗ | |
| March-April 2023 | improved after weeks of bedrest; could do slow 15-minute walksI improved after those weeks of bedrest in march and can do very slow walks for 15 minutes since April.In context ↗ | |
| May 2023 | crashed repeatedly and felt stuck in a bad relapseI am stuck in a bad relapse just now.In context ↗ | |
| June 2023 | lowest point, able to walk only once around the block a dayI was at my lowest point in June last year, only able to walk once around the block a day.In context ↗ | |
| August 2023 | walking increased from 10 to 28 minutesI'm getting better since mid June, but baby steps. I am glad I found out what is helping me and I'm increasing my walks week by week (10 mins mid june, now I am at 28 mins)In context ↗ | Brain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust) |
| March 2024 | on a beach vacation, enjoying lifeI am on a beach vacation right now, enjoying life.In context ↗ | Brain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust) |
| May 2024 | danced for three hours and managed five-hour outingsStill recovering but I’m a lot better. ... danced for 3 hours ... outings of around 5 hrsIn context ↗ | Brain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust) |
Adverse events
- Nattokinase“I started taking Natto 500FU yesterday and experienced an increase of palpitations today. It reminds me of my worse LC days.” In context ↗ Heart rhythm problems
- Nattokinase“I also tried natto a few months ago and had the same experience and did not continue it.” In context ↗ Heart rhythm problems
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I also don’t get PEM from mental exertion. I do have palpitations like crazy, fatigue, physical PEM and nerve issues.
In context ↗ - Heart symptoms & palpitations
ongoing Palpitations are my biggest concern on my LC journey.
In context ↗ - Pain & fibromyalgia
Joint and nerve pains as well as headaches are a constant companion though
In context ↗ - Headaches & migraine
headaches are a constant companion
In context ↗ - Neuropathy & tingling
fatigue, physical PEM and nerve issues
In context ↗ - Flu-like symptoms
flu like malaise
In context ↗ - Brain fog
I only had brain fog during my active infection of Covid but it disappeared a week later.
In context ↗
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