Lorrie's SEVERE CFS Full Recovery Story (+ Long COVID Recovery!)
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill before improving
- 8 years
- Published
- No date given
In their words
- Condition: ME/CFS
she herself lived with severe mecfs for over eight years before finally fully recovering
Watch the video ↗From the video’s captions - At worst: Very severe
having to have my boyfriend at the time carry me to the bathroom having to have my dad feed me at times
Watch the video ↗From the video’s captions - Now: Near normal
definitely fully recovered ... i still have days where i'm bed bound or whatever
Watch the video ↗From the video’s captions - Began after: another virus
i had just gotten some kind of virus
Summary
Lorrie Rivers fell ill with ME/CFS in her twenties after a virus and was severely ill for over eight years, at worst needing help to eat and get to the bathroom. She credits pacing, a strict diet and energy medicine, and says she has fully recovered from ME/CFS, though fibromyalgia still causes some bed-bound days. A COVID infection brought ME/CFS back for about three days, and she later recovered from long COVID.
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What they tried
What they credit
Also tried
Their words about each treatment
- prescriptions · Worse
gave me prescriptions to things that that personally made me even worse
Watch the video ↗From the video’s captions - dried worm supplements · No change
i tried dried worm supplements ... nothing was working with the worms
Watch the video ↗From the video’s captions - emotional freedom technique (EFT) · Helped
i actually started out with a method called uh emotional freedom technique eft which is tapping on meridians and i got some emotional relief
Watch the video ↗From the video’s captions - healing codes · Helped
which is what helped me out even more than the tapping actually once i learned how to do it
Watch the video ↗From the video’s captions - Trilogy · Helped
and that moved into trilogy and i'm a big fan
Watch the video ↗From the video’s captions - observing emotions and thoughts (mindset) · Helped
my job is to sit back and to really honor these emotions and really feel them fully and to just observe to just observe the thoughts
Watch the video ↗From the video’s captions - her own holistic course (Relief and Transformation) · Helped a lot
when i came down with long coved i followed my own course basically
Watch the video ↗From the video’s captions - pacing · Helped
it was still having to pace having to uh you know very very strict actually with my diet for many many many many many years
Watch the video ↗From the video’s captions - very strict diet · Helped
very very strict actually with my diet for many many many many many years
Watch the video ↗From the video’s captions
Approaches: Alternative therapies · Diet · Mind-body practices · Pacing · Trauma & somatic work
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| in my 20s | Virus, then collapsed on a hot film set and never recoveredi showed up on set and it was in south carolina actually on the beach and it was a hundred plus degrees outside and i literally passed outWatch the video ↗From the video’s captions | Not stated | |
| — | Carried to the bathroom and fed by her fatherhaving to have my boyfriend at the time carry me to the bathroom having to have my dad feed me at times because i couldn't lift my my hand or my armWatch the video ↗From the video’s captions | Very severe | |
| — | EFT tapping gave some emotional reliefi actually started out with a method called uh emotional freedom technique eft which is tapping on meridians and i got some emotional reliefWatch the video ↗From the video’s captions | Not stated | Trauma work (EFT, EMDR, TRE) |
| — | Healing codes, pacing and strict diet; able to attend a gentle yoga classi remember specifically one day when i was in a physical yoga class i was like actually physically there which i'd only just begun to be able to doWatch the video ↗From the video’s captions | Mild | |
| after over eight years | Fully recovered from ME/CFSshe herself lived with severe mecfs for over eight years before finally fully recoveringWatch the video ↗From the video’s captions | Recovered | |
| May 2020 | COVID turned into long COVID with the same ME/CFS symptomswithin a week or two i literally i woke up one morning and i went i have me cfs again that's what's happeningWatch the video ↗From the video’s captions | Severe | |
| a little over a year after COVID | Over long COVID using her own course; fibromyalgia still causes some bedbound daysdefinitely fully recovered the thing that's a little bit tricky for me personally is that i have fibromyalgia as well and have had that since i was a kid uh so i still have days where i'm bed boundWatch the video ↗From the video’s captions | Near normal |
Adverse events
- “gave me prescriptions to things that that personally made me even worse” Watch the video ↗From the video’s captions Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Brain fog
my brain's not working
Watch the video ↗From the video’s captions - Sleep problems
feeling like you got run over by a truck several times in the night
Watch the video ↗From the video’s captions - Muscle weakness
i couldn't lift my my hand or my arm
Watch the video ↗From the video’s captions - Anxiety & low mood
deep depression deep anxiety all these different things that i just knew was not me
Watch the video ↗From the video’s captions - Pain & fibromyalgia
i have fibromyalgia as well and have had that since i was a kid
Watch the video ↗From the video’s captions - Post-exertional malaise
without being afraid that they're going to crash the next day
Watch the video ↗From the video’s captions
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