Bedridden with long COVID, back to 95% with pacing, then relapsed after sinus infection
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3 months
- Last post
- Apr 2025
In their words
- Condition: Long COVID
I had long COVID back in October of 2024 and was bedridden for 27 days!
In context ↗ - At worst: Severe
I had long COVID back in October of 2024 and was bedridden for 27 days!
In context ↗ - Now: Relapsed
I was back to 95% health mid January ... it’s like I’m back to how I was in October!
- Began after: COVID
I had long COVID back in October of 2024 and was bedridden for 27 days!
In context ↗
Read from 13 of their posts and comments; links to the 9 this page draws on
Summary
They fell ill with long COVID in October 2024 and were bedridden for 27 days, with POTS, nerve damage and anxiety. By mid-January 2025 they were back to about 95% health, crediting pacing plus B-complex, fish oil, magnesium, creatine and electrolytes; their activity threshold rose from 1-2 to 4-6 hours. A non-COVID sinus infection in April 2025 put them back to their October state, mostly in bed, though their hot-hand episodes kept fading over time.
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What they tried
What they credit
Also tried
Their words about each treatment
- B-complex · Helped
once I started using b-complex my threshold for activity went from 1-2 hours to 4-6 and I was getting better daily
In context ↗ - fish oil · Helped
take B-complex and fish oil - it didn’t cure me but sure pulled me out of the mud a little
In context ↗ - magnesium · Helped
magnesium (doesn’t work all that well for me but I still take it)
In context ↗ - Gatorade, salt · Helped
B-complex, fish oil, Gatorade, salt and magnesium have helped
In context ↗ - creatine · Helped
creatine is for ATP production and helping with energy levels
In context ↗ - co Q10 · Not said
co Q10 is a new one (it’s kinda pricey though!)
In context ↗ - pacing · Helped
pacing has been the best thing for LC
In context ↗ - beta blocker (Propranolol) · Helped
it’s what helped me was a beta blocker, most prescribed is Propranolol
In context ↗ - Lexapro · Worse
after my lexapro decided it wasn’t gonna help me fight off anxiety anymore
In context ↗ - amoxicillin · Helped
was on amoxicillin but it just squashed the post nasal drip I was having
In context ↗ - breaking a plate / squeezing ice cubes · Helped
Here’s something that helped me when I get at my lowest ... break something
In context ↗ - time · Helped
mine got better with time
In context ↗
Approaches: POTS medication · Pacing · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| October 2024 | long COVID, bedridden 27 daysI had long COVID back in October of 2024 and was bedridden for 27 days!In context ↗ | Severe |
| mid January 2025 | back to 95% health, able to live a normal lifeI was back to 95% health mid January but was still seeing a lot of recurring symptoms but was able to still live a normal life.In context ↗ | Near normal |
| early April 2025 | relapse after a non-COVID sinus-type bugever since then I feel like I have the same body I did back in November/December!In context ↗ | Severe |
| 2025-04-30 | still largely in bed, hot-hand episodes fading with timeif I gotta spend all day in bed, so be itIn context ↗ | Severe |
Adverse events
- Escitalopram (Lexapro)“I needed up in the urgent care with a brain splitting headache after my lexapro decided it wasn’t gonna help me fight off anxiety anymore - I almost crashed my car on the way too.” In context ↗ Withdrawal problems
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
keeping me out of the PEM/Fatigue cycle
In context ↗ - Brain fog
definitely more brain fog and fatigue
In context ↗ - POTS & dysautonomia
I had POTS, cleared up after 6 days
In context ↗ - Neuropathy & tingling
I called it my hot hand, only the right one - it’s like when you go outside on a cold day and come back in and it stings
In context ↗ - Anxiety & low mood
anxiety through the roof
In context ↗ - Loss of smell or taste
I lost some of my taste of smell
In context ↗ - Sleep problems
feel narcoleptic
In context ↗
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