ME/CFS aches, viral symptoms over ten years, somewhat better after curcumin and D-ribose
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 10 years
- Last post
- Apr 2022
In their words
- At worst: Mild
whilst raising 3 young children and working full time
In context ↗ - Now: Somewhat better
I have enjoyed a couple of weeks of being able to socialize and feel closer to normal level of functioning.
In context ↗
Read from 16 of their posts and comments; links to the 14 this page draws on
Summary
A mother of three working full time had had ME/CFS for over ten years, with joint and body aches, constant viral symptoms and low immunity. Her energy had improved somewhat until a COVID infection in late 2021 shattered it, leaving her dizzy and weak. Curcumin, D-ribose and astragalus helped; a year of weight training caused monthly PEM flares, and a top NYC haematologist she paid $1,500 to see found nothing.
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What they tried
What they credit
Also tried
Their words about each treatment
- D-Ribose · Helped a lot
The supplement I shared has helped a lot with fatigue ... D-Ribose has been quite helpful.
In context ↗ - CoQ10 · No change
I've taken CoQ10 for years and it never did anything noticeable for me.
In context ↗ - NAC · No change
NAC did nothing for me.
In context ↗ - Nootropics from Formula · Worse
I have dabbled a little bit with Nootropics from Formula but at times I found them too stimulating.
In context ↗ - Weight training · Much worse
I have done it faithfully for over a year and it has sent me into severe PEM/flares monthly.
In context ↗ - Astragalus · Helped
So far after 5 weeks I have not had any sore throats, low grade fevers, chills or malaise ... I have enjoyed a couple of weeks of being able to socialize and feel closer to normal level of functioning.
In context ↗ - Epsom salt baths · Helped
Epsom salt baths and being religious about supplementing curcumin seem to help me.
In context ↗ - Acupuncture · Helped
I don't find a ton of relief from OTC pain medication so I do accupuncture, anti inflammatory supplements, heat and CBD.
In context ↗ - OTC pain medication · No change
I don't find a ton of relief from OTC pain medication
In context ↗ - Monoclonal antibodies · Not said
My doctor prescribed me monoclonal antibodies which can help prevent severe infection in those who might be prone to more severe case
In context ↗ - J&J covid vaccine · Helped
I got a similar boost from my covid vaccine as well.
In context ↗ - Warmer weather in Florida · Helped
Personally I feel an improvement in FL in warmer weather when visiting my parents
In context ↗
Approaches: Supplements · Vaccination
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2011 (estimated) | ME/CFS onset, no trigger identifiedmy condition has remained the same and worsened at time over 10 yearsIn context ↗ | Mild |
| December 2020 | viral illness with a fever for weeksGetting sick with a virus knocks me out for weeks, Last year I had one that led to a fever for 6 weeksIn context ↗ | Moderate |
| June 2021 | sick for a few days after the J+J jabI felt sick for a few days with the jabIn context ↗ | Mild |
| late November 2021 | COVID infection shattered her energyI am still recovering from the virus but I can already tell it has totally shattered my energy levelsIn context ↗ | Moderate |
| January 2022 | felt closer to normal after taking astragalusI have enjoyed a couple of weeks of being able to socialize and feel closer to normal level of functioningIn context ↗ | Mild |
| April 2022 | still needing help with energyI like it when I need energy to get through somethingIn context ↗ | Mild |
Adverse events
- Everyday exercise and activity“I have done it faithfully for over a year and it has sent me into severe PEM/flares monthly.” In context ↗ Made symptoms worse
- “I have dabbled a little bit with Nootropics from Formula but at times I found them too stimulating.” In context ↗ Side effects
- COVID vaccination as treatment“I felt sick for a few days with the jab and covid itself was about the same for me.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I have done it faithfully for over a year and it has sent me into severe PEM/flares monthly
In context ↗ - Pain & fibromyalgia
Joint pain and upper back/ neck / general body aches are a big symptom for me.
In context ↗ - POTS & dysautonomia
Major fatigue climbing stairs, dizziness, weakness feels like I can barely lift my arms
In context ↗ - Muscle weakness
weakness feels like I can barely lift my arms
In context ↗ - Flu-like symptoms
I am often sick with viral symptoms almost constantly (at least every 3 weeks or so)
In context ↗ - Temperature regulation
I had a fever for 11 days straight in December of 2020
In context ↗ - Vision problems
there are days where I feel like I can't even focus my eyes or move until like 1pm
In context ↗ - Anxiety & low mood
Feeling super down today.
In context ↗
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