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Long COVID Mild → somewhat betterIll 2 years before improving or writing

Long COVID with brain fog, fatigue and chest symptoms, somewhat better

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
2 years
Last post
Apr 2022
In their words
  • Condition: Long COVIDSo I've been a long hauler for close to 2 years. In context ↗
  • At worst: MildHR has been pretty good, 60s to 70s at rest, 80-90 when standing, and low 100-110 when walking. In context ↗
  • Now: Somewhat betterNow it's still anxiety but not as bad, brain fog, extreme fatigue and the chest issues. In context ↗
  • Began after: COVIDI think I had Covid very early on in the pandemic, sometime in February 2020
Read from 7 of their posts and comments; links to the 6 this page draws on

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Summary

They fell ill with suspected COVID-19 in February 2020 and had long-COVID symptoms from April 2020: panic attacks, 40 lb weight loss, tingling, muscle pain, dizziness and brain fog. They felt a little better by mid-2021, then caught Delta in September 2021 and from that Christmas had chest burning and tightness. By April 2022 anxiety was less frequent, but brain fog, fatigue and chest symptoms persisted and vitamin D2 gave no relief.

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What they tried

Also tried

eating small meals/snacks more often· HelpedAtivan (a benzo)· Helpedvitamin D2· No change
Their words about each treatment
  • eating small meals/snacks more often · HelpedI started eating small meals/snacks but more often. I think that helped my stomach start to expand and feel more normal. In context ↗
  • Ativan (a benzo) · HelpedI doctor also put me on a benzo which isn't good long term but I'm sure that is helping making them less frequent In context ↗
  • vitamin D2 · No changeMy doctor started me on vitamin D2 a little over a month ago, haven't tested my levels again yet, but I haven't seen any improvement in my symptoms. In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
April 2020long-COVID symptoms began: severe panic attacks, weight loss, tingling, muscle pain and dizzinessin April 2020 is when I think I began to experience my long covid symptoms. It started with severe panic attacks out of nowhere In context ↗Mild
August 2021started feeling a little better over about 7 monthsStarted feeling a little better about 7 months ago In context ↗Mild
December 2021chest burning and tightness after Delta reinfectionthen I caught Delta back in September 2021 ... Starting around Christmas I started getting more chest issues In context ↗Mild
April 2022anxiety less frequent but brain fog, extreme fatigue and chest symptoms ongoingNow it's still anxiety but not as bad, brain fog, extreme fatigue and the chest issues In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Anxiety & low moodsevere panic attacks out of nowhere In context ↗
  • Brain fogNow it's still anxiety but not as bad, brain fog, extreme fatigue and the chest issues In context ↗
  • Heart symptoms & palpitationsI get a burning sensation and some tightness in middle of chest that comes and goes In context ↗
  • Neuropathy & tinglingkind of like numbness and tingling In context ↗
  • Pain & fibromyalgiaon and off muscle pain, random muscle spasms throughout my body In context ↗
  • POTS & dysautonomialightheaded and dizziness In context ↗
  • Loss of smell or tastelost sense of smell and taste In context ↗
  • Gut problemsI think that helped my stomach start to expand and feel more normal In context ↗

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