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Long COVID Moderate → much betterIll 1 year before improving or writing

Long COVID with brain fog, fatigue and palpitations, now much better

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
1 year
Last post
Apr 2024
In their words
  • Condition: Long COVIDmy Covid infection that lead to my LC symptoms In context ↗
  • At worst: ModerateI was never bed bound but housebound on my worse days In context ↗
  • Now: Much betteri am not fully recovered, maybe 70-75% In context ↗
  • Began after: COVIDGot Covid in April 2023 after traveling overseas.
Read from 7 of their posts and comments; links to the 7 this page draws on

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Summary

A 28-year-old nurse developed long COVID in April 2023, with nausea, bloating and weight loss, then brain fog, fatigue, palpitations and anxiety that led to extended sick leave by December 2023. She tried acupuncture, ginger, vitamin D, a PPI, Pepcid with Zyrtec, magnesium threonate, Mitocore with CoQ10, Lexapro, yoga and therapy. By April 2024 she rated herself 70-75% recovered, hiking two hours and preparing to return to work.

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What they tried

Their words about each treatment
  • ginger chew or capsule · Helpedi sometimes take a ginger chew or capsule after meals and I feel like it helps a little but. In context ↗
  • nutrition drinks · Not saidI’ve been trying to supplement with nutrition drinks. In context ↗
  • eating clean · HelpedSmall meals, no fatty or fried foods, sticking with primarily fresh foods and minimizing any inflammatory foods. I feel like over time, it’s helped a little. In context ↗
  • acupuncture · Helped-acupuncture (relaxing, but very minimal effect) In context ↗
  • vitamin D+ K2 · Not said-vitamin D+ K2 ( I did have a low vit d level) In context ↗
  • PPI · Helped-PPI (helped a little but then stopped working so I stopped taking it) In context ↗
  • Pepcid · Not said-Pepcid and Zyrtec for possible MCAS In context ↗
  • magnesium threonate · Helped-magnesium threonate ( felt like this helped with my brain fog) In context ↗
  • mitocore · Helped-mitocore and COQ10 (this seemed to help with my energy levels a little bit) In context ↗
  • fish oil · Not said-fish oil (not sure if this is doing anything but it’s healthy to take anyways) In context ↗
  • SSRI-lexapro · Helped-SSRI-lexapro 5mg (I was so scared to start this initially but it really helped with my anxiety so I can finally start relaxing and calming my nervous system) In context ↗
  • yoga, meditation · Not said-yoga, meditation, therapy (basically doing things to get out of fight or flight) In context ↗
  • slow walks with increasing amounts of time; light aerobic exercise · Not saidslow walks with increasing amounts of time ... light aerobic exercise (keeping HR no more than zone 2) while being careful not to trigger PEM In context ↗
  • LMNT electrolyte · Not saidI also drink a packet of LMNT electrolyte daily to help my hydration. In context ↗
  • TIME · Helped a lotI think TIME was a major factor. In context ↗
  • leave from work and focus on recovering · HelpedAlso being able to take a leave from work and focus on recovering helped so much with stress and anxiety. In context ↗
  • sleep · HelpedTime and sleep. In context ↗
  • COVID vaccination as treatment · Not saidsore arm and a little tired for two/three days but it did not lower my progress In context ↗

Approaches: SSRIs · Radical rest

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo6 mo9 mo12 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
April 2023COVID infection, then GI symptoms beganAs I recovered from the initial infection, I suddenly started developing GI symptoms-unrelenting nausea, loss of appetite, abdominal bloating, and diarrhea. In context ↗Mild
mid 2023slight improvement, went back to workSlowly got a little better, went back to work (I’m a nurse so I work a physically demanding job) In context ↗Mild
October 2023nausea worse, brain fog, fatigue, chest tightness, anxiety, calling in sickaround October, not only did my nausea get worse, I slowly started developing worsening brain fog, fatigue, chest tightness and major anxiety In context ↗Mild
December 2023extended leave of absence, housebound on worst daysBy December, I was calling in sick so often that I decided to take an extended leave of absence from work. In context ↗Moderate
April 202470-75% recovered, two-hour hike, preparing to return to worki did a two hour hike with 1,000feet elevation the other day! i am preparing to return to work next week. i am not fully recovered, maybe 70-75%. In context ↗MildTime and spontaneous remission

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Gut problemsunrelenting nausea, loss of appetite, abdominal bloating, and diarrhea In context ↗
  • Gut problemsConstant nausea, feeling of fullness, bloating, etc etc. In context ↗
  • Brain fogI slowly started developing worsening brain fog, fatigue, chest tightness and major anxiety In context ↗
  • Headaches & migrainehead pressure and brain fog In context ↗
  • Heart symptoms & palpitationspalpitations and tachycardia (HR was 120-130s just from changing clothes) In context ↗
  • POTS & dysautonomiastill have some mild anxiety and dysautonomia like symptoms In context ↗
  • Temperature regulationdysautonomia like symptoms like heat intolerance In context ↗
  • Anxiety & low moodanxiety and depression (had a couple of panic attacks, first time) In context ↗
  • Post-exertional malaisemild PEM? (I was never bed bound but housebound on my worse days. In context ↗
  • Muscle weaknessWith exertion, my limbs ache and feel super heavy In context ↗

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