Long COVID
Moderate → near normalIll 4.5 years before improving or writing
Long COVID with tremors, POTS, pain and PEM after a vaccine, now nearly back to normal
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 4.5 years
- Last post
- Jul 2026
In their words
- Condition: Long COVID
I’ve had Long COVID since 2021.
In context ↗ - At worst: Moderate
Had major symptoms - tremors, 140 hr while brushing teeth, woke up with the feeling a car hit me in the night
In context ↗ - Now: Near normal
now, in year five, my physical symptoms are by far the best they’ve been. I feel largely normal again.
In context ↗ - Began after: a vaccination
My symptoms started after the COVID vaccine and were later recognized by doctors as fitting the Long COVID/post-COVID spectrum.
Summary
A woman who fell ill in October 2021 after a COVID vaccine, with tremors, tachycardia, POTS, pain, PEM, sensory sensitivity, panic attacks and visual problems. POTS eased within months and she was about 50% better by five months, with each year better than the last. By 2025 she rated herself 80-90% recovered and in 2026 felt largely normal physically, though a weak, tingling left hand, hormonal flares and lingering anxiety and depression remained.
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Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| October 2021 | Fell ill after the COVID vaccine: tremors, heart rate 140 while brushing teeth, felt hit by a car, POTS, pain, PEM, sensory sensitivity, panic attacksGot sick Oct 2021. Had major symptoms - tremors, 140 hr while brushing teethIn context ↗ | Moderate |
| early 2022 | POTS easing and about 50% better than at the start, but still unable to do sportsMy Pots was like 120-130 while standing at the beginning and now about 90-100 standing for 80% of the days. ... I‘m about 50% better than in the beginning | Moderate |
| about a year in | Things became a little more manageable but she was still far from wellAfter about a year things became a little more manageable, but I was still far from well.In context ↗ | Moderate |
| 2025-06-11 | Rated herself 80-90% recovered, with a weak tingling left hand, PMDD, anxiety and depression remainingI would say that I‘m 80-90% recovered - left with weak left hand / armIn context ↗ | Near normal |
| 2026-07-14 | Physical symptoms the best they have been, largely normal, with minor flares around her period and lingering anxietymy physical symptoms are by far the best they’ve been. I feel largely normal again.In context ↗ | Near normal |
Symptoms mentioned
Anxiety & low moodBrain fogHeart symptoms & palpitationsLight & noise sensitivityMuscle weaknessNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problemsTemperature regulationVision problems
Their words about their symptoms
- Post-exertional malaise
brain fog, fatigue, PEM, visual disturbances
In context ↗ - Brain fog
dizziness, brain fog, fatigue, PEM
In context ↗ - POTS & dysautonomia
I suspect there is still some lingering autonomic dysregulation
In context ↗ - Heart symptoms & palpitations
tachycardia, POTS-like symptoms, palpitations
In context ↗ - Pain & fibromyalgia
muscle pain, joint pain
In context ↗ - Sleep problems
unrefreshing sleep
In context ↗ - Muscle weakness
left with weak left hand / arm - due to ulnaris nerve
In context ↗ - Neuropathy & tingling
more like it tingles and feels weak
In context ↗ - Anxiety & low mood
major anxiety and depression
In context ↗ - Light & noise sensitivity
light and sound sensitivity
In context ↗ - Vision problems
twitching, visual problems, POTS
In context ↗ - Temperature regulation
I also stopped sweating properly for a while
In context ↗