Long COVID
Moderate → no benefitIll for 5.5 years
Long COVID pain, brain fog and racing heart, still unable to sit at a desk for ten minutes
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- 5.5 years
- Last post
- Oct 2026
In their words
- Condition: Long COVID
all this points to LONG COVID
In context ↗ - At worst: Moderate
unable to walk or exert
In context ↗ - Now: No benefit
NOT able to sit in front of desktop for 10 mins.my career is buried.
In context ↗ - Began after: COVID
had covid on second wave
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A 44-year-old woman in India became ill after COVID-19 in 2021, while working a high-performing corporate job she eventually quit. She reported severe back and nerve pain, exhaustion, brain fog, gut and histamine problems, and a racing heart on movement, and could not sit at a desk for ten minutes. Antihistamines found through social media helped a lot, but gut, histamine and brain fog were her main worries, and she was taking odd jobs rather than working in her career.
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What they tried
Also tried
Their words about each treatment
- steroid · Not said
found frozen shoulder (steroid taken)
In context ↗ - h1 · Helped
h1 and h2 (from a SM post )helps a lot
In context ↗ - avoid histamine foods · Not said
self diagonised mcas and avoid histamine foods
In context ↗ - diabetes tablets · Worse
diabetes in 180s but the tablets trigger joint pain and gut issues
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2021 | COVID during the second wave; illness beganmy life unravelled in 2021 ( had covid on second wave)In context ↗ | Mild | |
| 2022-2025 | nerve, jaw and shoulder pain, could not walk or exert; quit her careerall around nerve pain,jaw pain,shoulder pain,unable to walk or exert . immediately sleepy after certain foods..In context ↗ | Moderate | |
| 2026 | antihistamines helped a lot; brain fog and gut problems remained, not workingh1 and h2 (from a SM post )helps a lot.self diagonised mcas and avoid histamine foodsIn context ↗ | Moderate | H1 antihistamines (unspecified) |
Adverse events
- “diabetes in 180s but the tablets trigger joint pain and gut issues so not sure what to do” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBrain fogGut problemsMast cell (MCAS) & allergiesMuscle weaknessNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgia
Their words about their symptoms
- Brain fog
mainly brain fog ( cant remember or hold on to thoughts cohesively)
In context ↗ - Pain & fibromyalgia
all around nerve pain,jaw pain,shoulder pain
In context ↗ - Neuropathy & tingling
all around nerve pain
In context ↗ - Muscle weakness
unable to walk or exert
In context ↗ - Gut problems
main worries are gut,histamine and mainly brain fog
In context ↗ - Mast cell (MCAS) & allergies
self diagonised mcas and avoid histamine foods
In context ↗ - POTS & dysautonomia
racing thoughts and racing heart beat when i move
In context ↗ - Anxiety & low mood
nervousness and that means 0 chance of working or even clearing interviews
In context ↗