Long COVID
Moderate → relapsedIll 4 years before improving or writing
Long COVID brain fog and unrefreshing sleep, one good month after treatments then worse
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 4 years
- Last post
- Dec 2023
In their words
- Condition: Long COVID
You have described my long haul exactly.
In context ↗ - At worst: Moderate
i don't go anywhere .. don't do anything.
In context ↗ - Now: Relapsed
had a good month in august 2023 and then went south in late september 2023
In context ↗ - Began after: COVID
initial covid #1> 3/20
In context ↗
Summary
Alpine 35058 caught COVID-19 in March 2020 and had months of coughing, a year of burning and tingling in their head, about 20 months of brain fog, one fainting episode and unrefreshing sleep. They napped two to three hours, slept sitting up, lost 12 pounds and cut out activity. After montelukast, antihistamines and an inhaler they had one good month in August 2023, then went downhill; by December they called it their worst health year.
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What they tried
Also tried
Their words about each treatment
- reduced all stress, not going anywhere or doing anything · Not said
I have reduced all stress .. i don't go anywhere .. don't do anything.
In context ↗ - monoleukast (sp) · Not said
monoleukast (sp) 10mg in am and pm
In context ↗ - citirizine and loratidine (Zyrtec and Claritin) · Not said
citirizine and loratidine alternating daily (zyrtec and claritin)
In context ↗ - fluticasone propiponate and salmeterol inhaler · Not said
fluticasone propiponate and salmeterol inhaler in am and pm
In context ↗ - zpack · Not said
just finished my third zpack of the 2023 year
In context ↗ - 72 hour fast · Not said
just completed a 72 hour fast ... hoping to kick the MCAS syndrome by years end
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| March 2020 | COVID-19 infection, then months of coughing and other symptomsinitial covid #1> 3/20In context ↗ | Mild |
| June 2023 | slept 4.5 hours lying down after starting medsI have made a few strides ... i slept for 4 1/2 hours last night before coughingIn context ↗ | Moderate |
| August 2023 | a good monthhad a good month in august 2023In context ↗ | Mild |
| late September 2023 | went downhill againthen went south in late september 2023In context ↗ | Moderate |
| December 2023 | worst health year; third zpack and a 72-hour fastthis has been the worst health year I have ever had in my 67 years.In context ↗ | Moderate |
Symptoms mentioned
Brain fogFlu-like symptomsMast cell (MCAS) & allergiesNeuropathy & tinglingPOTS & dysautonomiaSleep problems
Their words about their symptoms
- Brain fog
brain fog that lasted around 20 months
In context ↗ - Neuropathy & tingling
a year of burning and tingling in the back of my head
In context ↗ - POTS & dysautonomia
one incident of passing out (felt it coming on and quickly kneeled
In context ↗ - Sleep problems
have not felt refreshed since november 2022
In context ↗ - Mast cell (MCAS) & allergies
this post covid syndrome has stimulated some food allergies and I now am very sensitive to numerous foods
In context ↗ - Flu-like symptoms
fatigue and general malaise which decreased yet am still not back at level of exercise and health
In context ↗