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Long COVID Severe → somewhat betterIll 4 years before improving or writing

Bedridden with long COVID, now somewhat better with vitamin B complex and eye exercises

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
4 years
Last post
Nov 2025
In their words
  • Condition: Long COVIDMy first covid symptom was this flipped switch balance and vision issue. In context ↗
  • At worst: SevereI literally only got out of bed (stumbling or on all fours) to go to the bathroom for months. In context ↗
  • Now: Somewhat betterI still experience some, but at the time, it helped a ton. I now don't get tingling or numbness unless my posture is wrong in some manner. In context ↗
  • Began after: COVIDMy first covid symptom was this flipped switch balance and vision issue. In context ↗
Read from 38 of their posts and comments; links to the 24 this page draws on

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Summary

A 34-year-old man got long COVID in early 2022; seizures every other day, neuropathy and disabling balance and vision problems left him bedridden for months. Vitamin B complex stopped the seizures, and chiropractic, vestibular eye exercises, supplements and diet changes slowly improved him. A prednisone allergic reaction set him back, and a vestibular disorder remained 20 months in; by late 2025 tingling came only with poor posture.

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What they tried

Also tried

Their words about each treatment
  • OTC allergy medicine (antihistamines) · WorseI think I just figured out this morning that antihistamines are what is causing the problems. In context ↗
  • Vitamin D · Not saidI take a few basic supplements (D, B complex, magnesium) In context ↗
  • Vitamin B complex · Helped a lotA vitamin B Complex stopped my seizures and helped me get some cognitive ability back. In context ↗
  • Magnesium glycinate · HelpedGlycinate helped me. Citrate didn't do anything. In context ↗
  • Magnesium citrate · No changeCitrate didn't do anything. In context ↗
  • Chiropractic adjustments · Helped a lotChiropractic helped a ton in more ways than just relieving the neuropathy. In context ↗
  • Massage · HelpedI initially saw a large improvement with chiropractic adjustment and massage. In context ↗
  • Diet changes · HelpedMost of my healing has come from supplements, diet changes, and time. In context ↗
  • Vestibular therapy eye exercises · Helped a lotVestibular Therapy Eye Exercises found on YouTube helped. It took several months to get my vision to stop moving. In context ↗
  • Proprioception exercises · Helpedproprioception exercises (best one was lay on belly with tips of toes on ground In context ↗
  • fps video games · Helpedfps video games In context ↗
  • Prednisone / corticosteroids · WorseThen I tried prednisone, had an allergic reaction, and I'm back to feeling crappy all the time. In context ↗
  • CBD oil · HelpedMine just recently went away when I started using a high quality cbd oil this week. Helped with my brain fog too. In context ↗
  • Osteopathic manipulation (OMM) · Helped a lotAll of that stopped after I went to an OMM a couple times. They did something just right and after an appointment I had a sharp nerve pain that just got worse and worse for maybe 3 minutes, then all of a sudden something in my body just clicked, it relaxed and all my nerve pains and sleep issues went away. In context ↗
  • Guided meditation app (Insight Timer) · HelpedThese resources helped me: ... And a guided thought meditation app called: Insight Timer. In context ↗
  • 12 phase trauma exercise · HelpedThese resources helped me: ... 12 phase trauma exercise In context ↗
  • Chamomile tea · HelpedMagnesium Glycinate, b-complex, and camomile tea helped stop my cusp of sleep thing. In context ↗
  • PT for posture · HelpedWhat really helped me further was osteopathic manipulation, Dr., and PT for posture. In context ↗

Approaches: Alternative therapies · Diet · Supplements

Their path

What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
early 2022COVID onset; seizures every other day, bedriddenI literally only got out of bed (stumbling or on all fours) to go to the bathroom for months. In context ↗
6 months inseizures stopped after vitamin B complexMy seizures stopped 6 months in after of all things taking a vitamin b complex supplement. In context ↗
late 2022chiropractic and vestibular eye exercises improved balance and visionThe next thing that helped a lot was chiropractic adjustments. It helped me go from debilitating balance and vision problems to still very bad but better. In context ↗
late 2022setback after allergic reaction to prednisoneThen I tried prednisone, had an allergic reaction, and I'm back to feeling crappy all the time. In context ↗
2023-03back to a routine, 50-70% better day to dayI'm 14 months in and still stuck at home due to head issues but a lot better than I was. In context ↗
2023-07only a debilitating vestibular disorder remainingI'm about 20 months in and my one remaining issue is a debilitating vestibular disorder. In context ↗
2025-11-02tingling and numbness only with bad postureI now don't get tingling or numbness unless my posture is wrong in some manner. In context ↗

Adverse events

  • Corticosteroid pulses“Then I tried prednisone, had an allergic reaction, and I'm back to feeling crappy all the time.” In context ↗ Allergic reaction / anaphylaxis
  • Corticosteroid pulses“I took two different corticalsteroids and had major allergic reactions the first day” In context ↗ Allergic reaction / anaphylaxis
  • H1 antihistamines (unspecified)“I've connected my anxiety, vivid dreams, insomnia, and derealization to taking antihistamines.” In context ↗ Mood or psychiatric effects
  • H1 antihistamines (unspecified)“but it causes insomnia, anxiety in my body/stress (idk different than mind anxiety) and my nerves to go crazy. Tremors, jerks and shakes.” In context ↗ Insomnia from treatment
  • Chiropractic“Chiropractic adjustment of the atlas and upper two c1 and c2 vertebra helped with my tremors quite a bit, however, after I started the adjustments mine would sometimes turn into bad headaches.” In context ↗ Side effects
  • Massage“I get some slight tremors on occasion from massage therapy or OMM.” In context ↗ Side effects
  • “after an appointment I had a sharp nerve pain that just got worse and worse for maybe 3 minutes” In context ↗ Nerve pain

Symptoms mentioned

Their words about their symptoms
  • Brain fogThe brain fog, vision issues and dizziness was debilitating for a long time. In context ↗
  • POTS & dysautonomiaI've had a slew of neurological issues but balance and vision issues charted as vertigo by the docs In context ↗
  • Mast cell (MCAS) & allergiesHave had allergic reactions to tons of things. In context ↗
  • Sleep problemsI think I've connected my anxiety, vivid dreams, insomnia, and derealization to taking antihistamines. In context ↗
  • Pain & fibromyalgiaI had a lot of neck pain, nerve pains and neuropathy to go with it. In context ↗
  • Gut problemsEye sight issues, gastro issues, tingling areas/neuropathy in many different areas In context ↗
  • Heart symptoms & palpitationsFatigue, tremors, shakes, sharp nerve pains, sinus inflammation, crazy heart rate etc. In context ↗
  • Neuropathy & tinglingI now don't get tingling or numbness unless my posture is wrong in some manner. In context ↗
  • Anxiety & low moodI've had a lot of pretty debilitating mental issues and extreme anxiety on and off. In context ↗
  • Temperature regulationmy body temp acutely dropping to 95 or below In context ↗
  • Vision problemsI still have vision issues but they are no longer debilitating. In context ↗

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