Bedridden with long COVID, now somewhat better with CoQ10 and nattokinase
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 18 months
- Last post
- Sep 2023
In their words
- Condition: Long COVID
Initially it was worst because i had no idea about Long covid
In context ↗ - At worst: Severe
i was bedridden with palpitation & severe internal tremors
In context ↗ - Now: Somewhat better
Almost 18 months in, i am getting better but the bad days and unnecessary stress makes me doubt my progress.
In context ↗ - Began after: COVID
I got covid on 15th jan and all good by 20th but then I started feeling something wrong
In context ↗
Read from 10 of their posts and comments; links to the 9 this page draws on
Summary
They caught COVID in January 2022 and, after a few good days, developed panic attacks, vision and memory problems, palpitations and internal tremors, becoming bedridden in February. Around eight months in they began CoQ10 and nattokinase, which they said really worked for their brain; they had been taking vitamin D and B12. By their last post at about 18 months they said they were getting better but still had bad days.
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What they tried
What they credit
Also tried
Their words about each treatment
- therapy · No change
Therapy didnt helped atall just burned my money.
In context ↗ - VIT D · Helped
I was severely low on Vit D and low on b12 but i managed my levels now got lil better in 5 mnths.
In context ↗ - hash · Helped
I started smoking hash( few days ago) (very less quantity) and my vision is improved while being high & anxiety is reduced
In context ↗ - COQ10 · Helped a lot
a month ago my doc recommended COQ10 and nattokinase. Prior i was taking VIT D and B12 .this stuff really works for my brain
In context ↗
Approaches: Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 1 month after onset: the story doesn’t say how ill they were before that. 4 steps say too little to place on the scale and are only in the table. The line stops at their last step that can be placed; how they are now is in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 15 January 2022 | COVID infection, followed a few days later by first symptomsI got covid on 15th jan and all good by 20th but then I started feeling something wrongIn context ↗ | Not stated | |
| 12 February 2022 | bedridden with palpitations and internal tremorsby 12th feb i was bedridden with palpitation & severe internal tremors spent rest of the feb on bedIn context ↗ | Severe | |
| July 2022 | still bedridden but able to watch some TVfrom past 6 months i am bedridden i cant do anything earlier now i am able to watch some tvIn context ↗ | Severe | |
| November 2022 | brain fog better after CoQ10 and nattokinasea month ago my doc recommended COQ10 and nattokinase ... this stuff really works for my brainIn context ↗ | Not stated | CoQ10 / ubiquinol |
| 21 August 2023 | still struggling but improvedstill struggling but i have improvedIn context ↗ | Not stated | |
| 17 September 2023 | getting better with bad days and stress setbacksAlmost 18 months in, i am getting better but the bad days and unnecessary stress makes me doubt my progressIn context ↗ | Not stated |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
when i stand up my heartrate becomes 120+
In context ↗ - Heart symptoms & palpitations
bedridden with palpitation & severe internal tremors
In context ↗ - Anxiety & low mood
Suicidal thoughts started
In context ↗ - Headaches & migraine
wierd pressure on the back of the head left side
In context ↗ - Neuropathy & tingling
severe internal tremors
In context ↗ - Light & noise sensitivity
my vision ia a wreck now especially in sunlight/sharp lights
In context ↗
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