Long COVID with palpitations, twitching and insomnia, now close to normal
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 7 months
- Last post
- Mar 2022
In their words
- Condition: Long COVID
I had Covid April 2020… was a long hauler for about 9 months.
In context ↗ - Now: Near normal
Most of my physical symptoms I’ve recovered from (yay!) ... So it’s really just some lingering neurological issues / brain fog.
In context ↗ - Began after: COVID
April 2020 is when I *think* I came down with my initial covid infection.
In context ↗
Read from 16 of their posts and comments; links to the 8 this page draws on
Summary
Pebble 86523's long COVID began in April 2020 with heart palpitations, tingling, muscle twitching and insomnia; she sometimes thought she was dying. Symptoms eased over about seven months and after a year she felt 90% back to normal. A Moderna vaccination briefly flared symptoms, and an August 2021 reinfection brought back neurological symptoms like internal tremors; a February 2022 omicron infection left muscle aches, headaches and depression. By March 2022 most physical symptoms had cleared, leaving brain fog and low mood.
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What they tried
What they credit
Also tried
Their words about each treatment
- Moderna shot (both jabs) · Worse
I then got the Moderna shot (both jabs) and it kinda made my symptoms flare up a little again.
In context ↗ - gradual recovery · Helped a lot
Over the course of 7 months, my symptoms did start to get better.
In context ↗ - gluten free/dairy free / no excessive sugars diet · Helped
they started going away when I cut out sugar/dairy/gluten from my diet
In context ↗ - amoxicillin · Worse
Each time I take my antibiotics, an hour later I start having all the symptoms I have with my covid long haul the first time I had it
In context ↗ - all the recommended vitamins · No change
I’ve been taking all the recommended vitamins and they haven’t gone away for me.
In context ↗
Approaches: Diet
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 13 months after onset: the story doesn’t say how ill they were before that. 6 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| April 2020 | COVID infection; long haul beginsApril 2020 is when I *think* I came down with my initial covid infection.In context ↗ | Not stated |
| 2020 | worst months of the long haulIn those months I literally thought I was dying.In context ↗ | Not stated |
| 7 months in | symptoms began to ease graduallyOver the course of 7 months, my symptoms did start to get better.In context ↗ | Not stated |
| early 2021 | Moderna vaccination flareI then got the Moderna shot (both jabs) and it kinda made my symptoms flare up a little again. Only for a short period of time though.In context ↗ | Not stated |
| May 2021 | 90% back to normal, some tingling leftA year later and after the vaccine , I feel 90% back to normal. I still have some tingling but that’s about it....In context ↗ | Near normal |
| August 2021 | COVID reinfection; long-haul symptoms returnedI got Covid again from one of my classmates and now my long haul symptoms are coming back. Heavier on the neurological side it seems.In context ↗ | Not stated |
| February 2022 | omicron reinfection; aches, headaches, depressionsince then I got delta in September 2021 and omicron in February of this year. I’m dealing with some muscle aches, headaches and depression but nothing compares to when I was long hauling.In context ↗ | Not stated |
| March 2022 | most physical symptoms cleared; lingering brain fog and low moodMost of my physical symptoms I’ve recovered from (yay!) (I’ve also had covid three times by the way). So it’s really just some lingering neurological issues / brain fog.In context ↗ | Near normal |
Adverse events
- Amoxicillin (Amoxil)“Each time I take my antibiotics, an hour later I start having all the symptoms I have with my covid long haul the first time I had it” In context ↗ Made symptoms worse
- COVID vaccination as treatment“I then got the Moderna shot (both jabs) and it kinda made my symptoms flare up a little again. Only for a short period of time though.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Heart symptoms & palpitations
The scariest for me was the heart palpitations
In context ↗ - Neuropathy & tingling
the tingling and muscle twitches
In context ↗ - Hair loss
extreme hair loss and weight loss
In context ↗ - Sleep problems
The insomnia is definitely back…
In context ↗ - Headaches & migraine
I’m dealing with some muscle aches, headaches and depression
In context ↗ - Brain fog
So it’s really just some lingering neurological issues / brain fog.
In context ↗ - Anxiety & low mood
I do still have psychiatric symptoms like depression and mood swings, irritability.
In context ↗ - Flu-like symptoms
It took about a year for my lymph nodes in my neck to go down. Still have a little swollen one in my groin
In context ↗
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