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Long COVID Severe → near normalIll 4.5 years before improving or writing

Unable to get out of bed for up to two years with long COVID, now near normal after a vaccine

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
4.5 years
Last post
Aug 2024
In their words
  • Condition: Long COVIDThen All the long COVID symptoms kicked in until the third year. In context ↗
  • At worst: SevereCouldn’t get out of bed for 1-2 years. In context ↗
  • Now: Near normalNow, I’ve recovered, but life is never the same. ... I’m still on medication for some stomach issues, but I am functional, and my life is back to normal. In context ↗
  • Began after: COVIDMarch 2020. Couldn’t get out of bed for 1-2 years. In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

A user in r/covidlonghaulers fell ill in March 2020 and could not get out of bed for one to two years, with monthly relapses, breathing issues for 12 months and major lung, kidney and back pain. A COVID vaccine alleviated some symptoms, and recovery was nonlinear. By August 2024 they were functional and back to normal life, though vision, brain and stomach problems remained, and they had lost 30 kg.

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What they tried

Also tried

The vaccine· Helpedmedication for some stomach issues· Not said
Their words about each treatment
  • The vaccine · HelpedThe vaccine did help alleviate some of my symptoms. In context ↗
  • medication for some stomach issues · Not saidI’m still on medication for some stomach issues In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y4 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
March 2020COVID-19 onset; bedboundMarch 2020. Couldn’t get out of bed for 1-2 years. In context ↗Severe
2020-2021monthly relapses, breathing issues, lung/kidney/back painI experienced monthly relapses, breathing issues for 12 months, and major lung, kidney, and back pain. In context ↗Not stated
before the third yearvaccine eased some symptomsThe vaccine did help alleviate some of my symptoms. In context ↗Not statedCOVID vaccination as treatment
2024-08-25functional, life back to normal, with leftover vision, brain and stomach problemsI’m still on medication for some stomach issues, but I am functional, and my life is back to normal. In context ↗Near normal

Symptoms mentioned

Their words about their symptoms

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