Unable to get out of bed for up to two years with long COVID, now near normal after a vaccine
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 4.5 years
- Last post
- Aug 2024
In their words
- Condition: Long COVID
Then All the long COVID symptoms kicked in until the third year.
In context ↗ - At worst: Severe
Couldn’t get out of bed for 1-2 years.
In context ↗ - Now: Near normal
Now, I’ve recovered, but life is never the same. ... I’m still on medication for some stomach issues, but I am functional, and my life is back to normal.
In context ↗ - Began after: COVID
March 2020. Couldn’t get out of bed for 1-2 years.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A user in r/covidlonghaulers fell ill in March 2020 and could not get out of bed for one to two years, with monthly relapses, breathing issues for 12 months and major lung, kidney and back pain. A COVID vaccine alleviated some symptoms, and recovery was nonlinear. By August 2024 they were functional and back to normal life, though vision, brain and stomach problems remained, and they had lost 30 kg.
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What they tried
Also tried
Their words about each treatment
- The vaccine · Helped
The vaccine did help alleviate some of my symptoms.
In context ↗ - medication for some stomach issues · Not said
I’m still on medication for some stomach issues
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| March 2020 | COVID-19 onset; bedboundMarch 2020. Couldn’t get out of bed for 1-2 years.In context ↗ | Severe | |
| 2020-2021 | monthly relapses, breathing issues, lung/kidney/back painI experienced monthly relapses, breathing issues for 12 months, and major lung, kidney, and back pain.In context ↗ | Not stated | |
| before the third year | vaccine eased some symptomsThe vaccine did help alleviate some of my symptoms.In context ↗ | Not stated | COVID vaccination as treatment |
| 2024-08-25 | functional, life back to normal, with leftover vision, brain and stomach problemsI’m still on medication for some stomach issues, but I am functional, and my life is back to normal.In context ↗ | Near normal |
Symptoms mentioned
Their words about their symptoms
- Breathlessness
breathing issues for 12 months
In context ↗ - Pain & fibromyalgia
major lung, kidney, and back pain
In context ↗ - Vision problems
my vision isn’t the same
In context ↗ - Brain fog
my brain is slightly damaged
In context ↗ - Gut problems
I’m still on medication for some stomach issues
In context ↗