ME/CFS
Severe → much betterNeeds ongoing treatment
Largely stuck in bed with ME/CFS, now much better with Vyvanse
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Jul 2025
In their words
- Condition: ME/CFS
I'm working full-time (30-35 hrs/week) as someone who is "mild"
In context ↗ - At worst: Severe
I had been stuck to my bed previous to this job but now it feels worse.
In context ↗ - Now: Much better
Overall, I think my health and stamina has gotten better (compared to previous years).
In context ↗
Read from 14 of their posts and comments; links to the 13 this page draws on
Summary
Dusk 25968 was largely stuck in bed before taking a physically demanding full-time food service job in late 2023, which left them in pain and sleeping through their time off. Later they worked 30-35 hours a week and said their stamina had improved, though they could do nothing outside work and quit school in October 2024. Vyvanse helped them function, while Adderall and Concerta made them sick and Ritalin and Strattera didn't work well for them.
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What they tried
Also tried
pink and yellow tinted rx glasses· HelpedT (testosterone)· Helpedmeloxicam· HelpedVyvanse· HelpedCOQ10· No changepropranolol· No changecoffee· No changeAdderall / Concerta / Ritalin· WorseAdderall / Concerta / Ritalin· WorseStrattera· Worsenortriptyline· Not saidlamotrigine· Not saidlexapro· Not saidlosartan· Not said
Their words about each treatment
- Adderall / Concerta / Ritalin · Worse
Adderall made me so sick and gave me severe stomach pain
In context ↗ - Strattera · Worse
didn't do well with Strattera or Ritalin either
In context ↗ - COQ10 · No change
I take a higher dose at night with my other meds but I can’t remember how much mg. Hasn’t done anything for me
In context ↗ - pink and yellow tinted rx glasses · Helped
I use pink tinted rx glasses in the daytime and yellow tint at night ... it helps with eye pain from lights
- T (testosterone) · Helped
I’ve been on T for almost a year now and the only thing it helped was my PMS and PMDD.
In context ↗ - nortriptyline · Not said
They got me an rx for nortriptyline but that ran out and not entirely sure if it helped.
In context ↗ - meloxicam · Helped
I have meloxicam that I take but it doesn’t always help.
In context ↗ - lamotrigine · Not said
I do take lamotrigine and lexapro to help my symptoms.
In context ↗ - propranolol · No change
I never noticed a difference ... I think it was prescribed to me for anxiety and as needed.
In context ↗ - losartan · Not said
I have losartan now for my high blood pressure
In context ↗ - Vyvanse · Helped
I'm currently on 40mg after starting on 30mg. ... I can only really tolerate Vyvanse with a few side effects.
- coffee · No change
It doesn't do anything for me energy-wise
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| before December 2023 | mostly stuck in bed before starting the food service jobI had been stuck to my bed previous to this jobIn context ↗ | Severe |
| 2023-12-20 | crashed working full-time on her feet in food serviceI am on my feet 24/7 with no breaks. When I get home or rest my legs feel locked upIn context ↗ | Moderate |
| 2025-07-02 | working 30-35 hours a week, better stamina but nothing left outside workmy health and stamina has gotten better (compared to previous years). I can’t say why that is to be honest, but I’m able to take the bus to and from work.In context ↗ | Mild |
Adverse events
- Amphetamine salts (Adderall)“Adderall made me so sick and gave me severe stomach pain” In context ↗ Gut side effects
- Atomoxetine (Strattera)“didn't do well with Strattera or Ritalin either” In context ↗ Side effects
- Methylphenidate (Ritalin, Concerta)“didn't do well with Strattera or Ritalin either” In context ↗ Side effects
- Amphetamine salts (Adderall), Methylphenidate (Ritalin, Concerta)“Concerta/Adderall made me feel sick and gave me severe stomach pain” In context ↗ Gut side effects
- Lisdexamfetamine (Vyvanse, Elvanse)“I can only really tolerate Vyvanse with a few side effects” In context ↗ Side effects
- Amphetamine salts (Adderall), Methylphenidate (Ritalin, Concerta), Lisdexamfetamine (Vyvanse, Elvanse)“side effects I get from not being on mine for a few days or a week if I run out completely” In context ↗ Withdrawal problems
- Amphetamine salts (Adderall), Methylphenidate (Ritalin, Concerta), Lisdexamfetamine (Vyvanse, Elvanse)“I’ve tried stimulants for it but it just ends up backfiring…” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodHeart symptoms & palpitationsLight & noise sensitivityNeuropathy & tinglingPain & fibromyalgiaSleep problems
Their words about their symptoms
- Pain & fibromyalgia
my feet are in constant pain
In context ↗ - Sleep problems
Once I get home from work I immediately pass out (sleep) for multiple hours
In context ↗ - Light & noise sensitivity
I can wear them at night and it helps with eye pain from lights
In context ↗ - Neuropathy & tingling
My right arm falls asleep constantly and my hand gets painful when trying to use it.
In context ↗ - Heart symptoms & palpitations
I tend to have a higher than average BPM
In context ↗ - Anxiety & low mood
I’m tired of being in pain and not sure how I can keep going
In context ↗