Bedbound two years with long COVID, improved with rest, then relapsed after reinfection
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2.5 years
- Last post
- Sep 2026
In their words
- At worst: Severe
I was bedbound for 2 years.
In context ↗ - Now: Relapsed
I recovered to about 95% after 3 years. Unfortunately, I caught COVID again a year later and relapsed.
In context ↗ - Began after: a vaccination
I had a reaction to the vaccine in January of 2022 at age 20, which left me with extreme symptoms for 2+ years
In context ↗
Read from 38 of their posts and comments; links to the 14 this page draws on
Summary
Alder 66901, a 25-year-old woman, fell ill at 20 after a January 2022 vaccine reaction and was bedbound for two years with POTS, MCAS and brain fog. A Covid infection in August 2022 made it longer, but time and rest brought her to about 95% by mid-2024 and a normal life through 2025. A February 2026 reinfection relapsed her; low iron and B12 found then, and iron supplements, helped her improve.
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What they tried
What they credit
Also tried
Their words about each treatment
- Zyrtec (cetirizine) · Helped
I took Zyrtec the first time around and it seemed like it was the only thing that took the edge off for me!
In context ↗ - supplements / meds / extra stuff · No change
I even quit all of my supplements/meds/extra stuff as they didn’t do anything for me.
In context ↗ - calming the nervous system / getting out of fight or flight · Helped
getting out of my fight or flight mode helped my body drastically too
In context ↗ - rest · Helped
Time and rest were the only things that helped me.
In context ↗ - time · Helped a lot
Unfortunately it was just time that healed me the first time.
In context ↗ - Iron Bisglycinate · Helped a lot
I did supplement iron for a good 4-5 months before feeling a whole world of better with my breathlessness
In context ↗ - B-12 · Helped
recently started B-12 and I’m already seeing improvement in issues I’ve had for years
In context ↗
Approaches: Pacing · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| January 2022 | vaccine reaction started long covidI had a reaction to the vaccine in January of 2022 at age 20, which left me with extreme symptoms for 2+ yearsIn context ↗ | Severe | |
| August 2022 | Covid infection made it longerI was then infected with Covid in August of that year, which seemed to not make it too much worse but definitely made it longerIn context ↗ | Severe | |
| 2022-2023 | bedbound for two yearsI was bedbound for 2 years. ... I had mild to moderate me/cfs which was part of the reason I was bedbound, but had severe and debilitating dysautonomia/POTS | Severe | |
| 2024 | began to get her life backIn 2024, I began to get my life back, and the entirety of 2025 I was pretty much completely normal againIn context ↗ | Near normal | Time and spontaneous remission |
| 2025 | back at work, gym and travellingI work a retail job and I’m on my feet constantly, I was going to the gym regularly, walking for long periodsIn context ↗ | Recovered | Time and spontaneous remission |
| February 2026 | Covid reinfection, relapse of long covidI went from easily walking 25,000 steps a few weeks ago on vacation with my partner, to getting winded walking to my carIn context ↗ | Moderate | |
| September 2026 | improving after iron and B12 supplementationI have supplemented iron since then and feel like a new personIn context ↗ | Mild | Iron infusion / ferritin repletion |
Adverse events
- Cetirizine (Zyrtec)“I think my weight gain is partially to blame for taking zyrtec every single day for 2 years, as antihistamines are known to cause weight gain and inability to lose weight!” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I did or do have POTS. ... is standing and getting lightheaded and dizziness
In context ↗ - Mast cell (MCAS) & allergies
POTS, MCAS, intense brain fog and derealization
In context ↗ - Brain fog
some very specific symptoms started up again immediately after, like my bulging veins and brain fog
In context ↗ - Heart symptoms & palpitations
I no longer have super high heartrate/skipped beats and have more energy again
In context ↗ - Breathlessness
a whole world of better with my breathlessness
In context ↗ - Vision problems
improving my visual snow
In context ↗ - Neuropathy & tingling
my legs/arms don’t fall asleep/have pins and needles as quickly anymore
In context ↗ - Anxiety & low mood
I was ready to end it a year ago
In context ↗ - Muscle weakness
here I am, weak, breathless, old symptoms I had completely forgotten about
In context ↗
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