Long COVID
Moderate → somewhat betterNeeds ongoing treatment
Severe photophobia and migraines with long COVID, somewhat better with Botox
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Jul 2026
In their words
- Condition: Long COVID
With the Long Covid, causing these two things
In context ↗ - At worst: Moderate
Since I have severe photophobia, more than less than an hour of I use a day leads to migraines.
In context ↗ - Now: Somewhat better
Are things normal, no, but they are better than they were.
In context ↗ - Began after: COVID
With the Long Covid, causing these two things
In context ↗
Summary
A person with long Covid described severe photophobia, a series of back-to-back migraines at the start of the illness, and neuropathic ocular pain; migraine pain made thinking hard. They found NOIR goggles, cane training, a Miami specialist and Botox every three months helpful, with Botox easing the migraines and the head, ear and facial bone pain tied to the photophobia. They said things were better than they had been, though not normal.
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What they tried
Also tried
Their words about each treatment
- NOIR goggles · Helped
Things that I have found helpful for the severe photophobia I have are NOIR goggles
In context ↗ - cane training · Helped
white, cane training, and a specialist at BASCOM Palmer
In context ↗ - specialist at BASCOM Palmer · Helped
a specialist at BASCOM Palmer in Miami Florida who is seeing me for neuropathic ocular pain
In context ↗ - Botox · Helped
Also Botox every three months has been helpful.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| start of illness | Long Covid onset with back-to-back migraines and severe photophobiaAt the start of my illness I had a series of back to back migraines.In context ↗ | Moderate |
| 2026-07-22 | photophobia and neuropathic eye pain better with goggles, cane training, an eye specialist and BotoxAre things normal, no, but they are better than they were.In context ↗ | Mild |
| 2026-07-24 | Botox every three months easing migraine-related head, ear and facial painthe Botox helps control the brain on fire basically as well as the head, ear aches, facial bone pain related to the severe photophobiaIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Light & noise sensitivity
the severe photophobia I have
In context ↗ - Headaches & migraine
more than less than an hour of I use a day leads to migraines
In context ↗ - Brain fog
the migraine pain made it hard for thinking and other things
In context ↗ - Neuropathy & tingling
a specialist at BASCOM Palmer in Miami Florida who is seeing me for neuropathic ocular pain
In context ↗ - Breathlessness
It is not fun to have it released when it has locked up.
In context ↗