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ME/CFS No benefitIll for 3 years

Severe fatigue and fibromyalgia symptoms with ME/CFS, no better after monolaurin or keto

Condition
ME/CFS
At worst
Not stated
Ill for
3 years
Last post
Aug 2018
In their words
  • Condition: ME/CFSI've had a suspicion that my cfs is caused by a virus/bacteria/fungus. In context ↗
  • Now: No benefitI have felt the same or worse ever since. In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on

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Summary

Cove 28698 fell ill suddenly in November 2015 with severe fatigue and fibromyalgia symptoms and said they felt the same or worse since. They tried monolaurin but could never take it more than two days because it caused flu-like feelings, gas, bloating and stomach upset. Two months of keto in 2018 brought a racing heart, anxiety, breathlessness, dizziness and brain fog after meals they feared was autonomic dysfunction. They still had CFS in August 2018.

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What they tried

Also tried

Their words about each treatment
  • monolaurin · WorseI take have never been able to take it for more than 2 days because it gives me a flu-y type issues. In context ↗
  • keto (low carb) · WorseSo I did keto (low carb) two months and I've started to have some issues. In context ↗
  • eating carbs · No changeI've tried eating carbs and it doesn't make a difference. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
November 2015sudden onset of severe fatigue and fibromyalgia symptomsI was feeling great, happy and energetic last November and then boom. Severe fatigue and fibromyalgia symptoms. In context ↗
August 2018after two months of keto: racing heart, anxiety, breathlessness, dizziness and brain fog after mealsI've noticed whenever I eat now I get a big adrenaline rush ... After I eat my heart races and I get bad anxiety In context ↗Keto and low-carb diets
2018-08-25still had CFSI really wish I didn't have cfs In context ↗

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Pain & fibromyalgiaSevere fatigue and fibromyalgia symptoms In context ↗
  • Gut problemsGas, bloating, stomach issues In context ↗
  • POTS & dysautonomiaI've noticed whenever I eat now I get a big adrenaline rush In context ↗
  • Heart symptoms & palpitationsAfter I eat my heart races In context ↗
  • BreathlessnessShortness of breath, tachycardia, dizziness, brain fog, always after I eat In context ↗
  • Brain fogShortness of breath, tachycardia, dizziness, brain fog In context ↗
  • Anxiety & low moodI get bad anxiety In context ↗

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