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Long COVID Mild → near normalIll 5 months before improving or writingNeeds ongoing treatment

Long COVID with fatigue, now near normal after low-histamine diet and melatonin

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
5 months
Last post
Jun 2023
In their words
  • At worst: MildThe first couple of months I had to be less active in the classroom In context ↗
  • Now: Near normalI've been a lot better over the past 6 months. ... However, it's minor, not as frequent, and more comes in waves. In context ↗
  • Began after: COVIDIm 32M and have hauled since September. In context ↗
Read from 21 of their posts and comments; links to the 14 this page draws on

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Summary

Nightjar 89940, a 32-year-old teacher, has had long COVID since September 2020, with fatigue, breathlessness, numbness and tingling, brain fog and morning racing heart. A low-histamine diet, melatonin 5 mg, PEA and a second Pfizer dose were followed by substantial improvement, and he was teaching and living near-normally five months in. Minor brain fog, dissociation, fatigue, breathlessness and palpitations continued in waves.

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What they tried

Also tried

PEA (Palmitoylethanolamide)· Helpedsleep aid that has valerian root· HelpedMen's multi-vitamin· Helpedsleeping on my stomach· Not saidno flush Inositol Hexanicotinate Niacin· Not saidVitamin D3· Not saidKefir milk· Not said
Their words about each treatment
  • low histamine diet · Helped a lotIt's what has allowed me to live semi normally for the last 4 months! In context ↗
  • sleeping on my stomach · Not saidI'm sleeping on my stomach as I know this opens up the lungs a lot more. In context ↗
  • no flush Inositol Hexanicotinate Niacin · Not saidWe'll see if it does anything to alleviate symptoms, but my body just kinda feels weird right now. In context ↗
  • Melatonin · Helped a lotIt's made a WORLD of difference. In context ↗
  • Vitamin D3 · Not saidVitamin D3 - not sure, but heard vitamin D was pretty low for most Long haulers. In context ↗
  • PEA (Palmitoylethanolamide) · HelpedHas helped with the numbness and tingling. In context ↗
  • sleep aid that has valerian root · HelpedWhile I still don't sleep perfectly, it's been much better since taking those things. In context ↗
  • Kefir milk · Not saidI've also started drinking Kefir milk as a probiotic. In context ↗
  • 2nd shot of Pfizer · HelpedI am vaccinated and that did help. In context ↗
  • time · HelpedI think though, that my body healed the CIDP over time. In context ↗
  • Vitamin B12 · HelpedI do take a number of supplements now, which has helped the long covid overall. In context ↗

Approaches: Diet · Supplements · Vaccination

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
September 2020COVID-19 followed by long COVID symptomsIm 32M and have hauled since September. In context ↗Mild
January 2021Melatonin improved sleep, morning heart rate and daytime energyStarted taking 5 mg Melatonin before going to bed the last week and a half. It's made a WORLD of difference. In context ↗Mild
February 2021Low-histamine diet; back to working normally most of the timelow histamine and it's allowed me to work normally most of the time ... now that I'm 5 months in, I am pretty much living normally In context ↗Near normalLow-histamine diet
April 2021Second Pfizer dose; further improvement with minor symptoms leftGot my 2nd shot of Pfizer and while feeling achy/not well the first day after, have experienced significant improvements the last two weeks. Still have minor symptoms but much better overall! In context ↗Near normalCOVID vaccination as treatment
August 2022A lot better over six months; remaining symptoms minor and in wavesI've been a lot better over the past 6 months. Still will have brain fog, some disassociation, some fatigue, some shortness of breathe, and some palpitations across my chest. In context ↗Near normal
June 2023Still taking supplements, melatonin most helpfulI currently take Vitamin B12, a Men's multi-vitamin, Melatonin at night (was the most helpful) In context ↗Near normal

Adverse events

  • “I bought a 500 mg no flush Inositol Hexanicotinate Niacin and took it tonight. We'll see if it does anything to alleviate symptoms, but my body just kinda feels weird right now.” In context ↗ Side effects
  • COVID vaccination as treatment“Got my 2nd shot of Pfizer and while feeling achy/not well the first day after, have experienced significant improvements the last two weeks.” In context ↗ Side effects

Symptoms mentioned

Their words about their symptoms
  • Neuropathy & tinglingFor tingling and numbness, I've been taking PEA (Palmitoylethanolamide) and that really has reduced it. In context ↗
  • Brain fogStill will have brain fog, some disassociation, some fatigue In context ↗
  • BreathlessnessShortness of breath still happens to me but it's become more rare the last month. In context ↗
  • Heart symptoms & palpitationssome palpitations across my chest In context ↗
  • Sleep problemsWhile I still don't sleep perfectly, it's been much better since taking those things. In context ↗
  • Mast cell (MCAS) & allergiesI was able to drink caffeine for a while, but my body started reacting poorly to it. In context ↗

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