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Long COVID Moderate → relapsedIll 2 years before improving or writing

Long COVID with gut pain and panic, improved 75% then relapsed; vitamin D helped

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
2 years
Last post
Oct 2026
In their words
  • Condition: Long COVIDmy problems started in May 2024, after a Covid infection In context ↗
  • At worst: ModerateRight now I'm taking a break from work ... weeks of torment with extreme anxiety, panic, a feeling of imminent death In context ↗
  • Now: RelapsedLast month, I had already recovered about 80% or 90% of my old self ... But last week, I started feeling bad again In context ↗
  • Began after: COVIDmy problems started in May 2024, after a Covid infection In context ↗
Read from 31 of their posts and comments; links to the 15 this page draws on

Request to remove this story

Summary

Petrel 78166 developed long COVID in May 2024 after a Covid infection, with gut pain, anxiety and panic, muscle spasms, tinnitus and food and smell sensitivity. IV fluids gave brief relief and she improved about 75% before a May 2025 reinfection. Vitamin D, taken from December 2025, helped noticeably but excess caused anxiety. Symptoms still fluctuate; in October 2026 vitamin D still gave near-immediate relief.

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What they tried

Also tried

Blepha Clean eyelid wipes· Helped a lotintravenous fluids· Helped · wore offresting and relaxing· Helpedantibiotics· Worseomeprazole· Worsefolic acid· Worsemagnesium· Worsemedication to calm me down· Not said
Their words about each treatment
  • antibiotics · WorseIt was a terrible week of treatment. I felt horribly agitated and unwell, along with anxiety and nausea. In context ↗
  • intravenous fluids · HelpedAfter receiving intravenous fluids, I began to feel normal, without fatigue or anxiety. In context ↗
  • medication to calm me down · Not saidthey gave me IV fluids and some more medication to calm me down, for the nausea and stomach aches In context ↗
  • eliminating lactose, gluten, milk and white bread · HelpedI stopped eating white bread and drinking milk, and I'm taking vitamin supplements that I was deficient in. In context ↗
  • omeprazole · Worselast year I took omeprazole for heartburn I’d been experiencing for a few weeks, and I suffered a terrible anxiety attack In context ↗
  • vitamin D3 · HelpedI felt so much better after the first dose that I started taking the pill once a week for three months. In context ↗
  • folic acid · WorseI took folic acid yesterday, as prescribed by my doctor, and felt very anxious after 10 minutes. In context ↗
  • magnesium · WorseMagnesium calms me down on the first day but causes a lot of noise in my intestines and the next day I feel even more of all the Covid symptoms! In context ↗
  • Blepha Clean eyelid wipes · Helped a lotI suffered from this for a long time, and an ophthalmologist prescribed them. They really brought back my quality of life. In context ↗
  • resting and relaxing · HelpedTry taking vitamin D, resting, relaxing, and eating as natural a foods as possible. That has helped me overcome those sensations. In context ↗

Approaches: Diet · Supplements

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
May 2024long COVID after Covid infectionmy problems started in May 2024, after a Covid infection In context ↗Moderate
2024IV fluids at hospital, improved about 75%I left practically cured, but the symptoms returned with less intensity In context ↗Mild
May 2025Covid reinfection, ringing in headIn May of last year, I got COVID again, this time I got a ringing in my head In context ↗Mild
December 2025weeks of torment, anxiety, panic, insomniaweeks of torment with extreme anxiety, panic, a feeling of imminent death, burning throughout my body In context ↗Moderate
January 2026supplements made every symptom worseEach supplement gives me a symptom worse than the last In context ↗Moderate
February 2026appetite and energy returnedI've improved, my appetite has returned, and I have more energy too In context ↗MildVitamin D and sun exposure
March 2026after a head injury almost no symptomsthis period was the best: 0 anxiety, 0 intestinal problems, 0 bizarre sensations In context ↗Near normal
April 2026hell returned once the head injury healedWhen I fully healed from my wounds and the pain from the fall disappeared, hell returned in full force In context ↗Moderate
August 2026back to 80-90% of old self, then worsening againI had already recovered about 80% or 90% of my old self In context ↗Mild
October 2026symptoms come and go, vitamin D relievesVitamin D seems to provide almost immediate relief In context ↗MildVitamin D and sun exposure

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Gut problemsintestinal problems, which for me are the worst In context ↗
  • Anxiety & low moodmy anxiety skyrocketed and became very difficult to control In context ↗
  • Brain fogreduced short-term memory, forgetfulness of words, difficulty concentrating In context ↗
  • Pain & fibromyalgiamuscle spasms, and body aches In context ↗
  • Neuropathy & tinglinga tingling or crawling sensation on my skin In context ↗
  • Tinnitusa ringing in my head, a sound I only hear when I'm sick, it's now present 24 hours a day In context ↗
  • Sleep problemsnot being able to sleep at night In context ↗
  • Heart symptoms & palpitationshigh blood pressure, racing heart In context ↗
  • Loss of smell or tastedistortion and decrease in taste and smell In context ↗
  • Headaches & migraineI felt very nauseous and had a headache In context ↗
  • Hair lossone of them is hair loss In context ↗

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