Long COVID with vertigo and brain fog, remission after therapy and rest, then relapsed
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 3 years
- Last post
- Oct 2025
In their words
- Condition: Long COVID
First caught COVID in June '22. Was miserable for a full year-- CFS type symptoms, vertigo, dizziness, tachycardia, the works.
In context ↗ - At worst: Moderate
I don't go out anymore. I don't eat what I want to or do what I want to do. I just sit here because it's all I can do.
In context ↗ - Now: Relapsed
In November of last year, I caught COVID from one of the kids. I'm fully relapsed.
In context ↗ - Began after: COVID
First caught COVID in June '22.
In context ↗
Read from 39 of their posts and comments; links to the 17 this page draws on
Summary
A teacher who caught COVID in June 2022 spent a year with CFS-type symptoms, vertigo, breathlessness and brain fog. Weekly speech-language and physical therapy plus rest brought full remission in June 2023, but a reinfection that autumn put her back at square one. Over a year on she had made no progress and could no longer afford the specialists; by 2025 her brain fog had eased enough to finish writing a book, though she was not recovered.
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What they tried
What they credit
Also tried
Their words about each treatment
- EMST 150 (speech/language pathology) · Helped a lot
I've been using an EMST 150 from November to now and it's made all the difference.
In context ↗ - physical therapy (vestibular rehab) · Helped
Physical therapy is what helped me so far, even with the setbacks.
In context ↗ - strength training and light cardio · Not said
I had been starting to exercise again and everything. I had just started strength training again
In context ↗ - time and rest · Helped a lot
truly I think what put me in remission after that first year was time and rest
In context ↗ - pacing · Helped
Being so careful with my progress, monitoring myself so I don’t trigger PEM, resting when I don’t want to.
In context ↗ - talk therapist · Not said
Talk therapist for the mental toll everything was taking.
In context ↗ - the pill (combined and progesterone-only) · Worse
I’ve tried the pill twice— one had estrogen and progesterone and the other was a progesterone only pill and both times I got horrible panic attacks
In context ↗
Approaches: Pacing
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| June 2022 | caught COVID, long COVID symptoms beganFirst caught COVID in June '22.In context ↗ | |
| — | dizzy and lying down for a couple of monthsFor a couple of months I was so dizzy I couldn’t do much more than lay down.In context ↗ | |
| February 2023 | lung strength above average after daily breathing exercisesMy lungs were at half the strength they should have been in October. I'm now ABOVE the average!!!In context ↗ | |
| March 2023 | major backslide after stress and a January head coldI walk with a cane now because my left side is all out of whack and I'm just that tired that I need something to prop me up.In context ↗ | |
| June 2023 | full remissionFINALLY hit remission after constantly working at it in June '23.In context ↗ | |
| October 2023 | reinfected with COVID, back to square oneI just tested positive again for COVID.In context ↗ | |
| May 2024 | creeping back toward remission while working from homeI'm still creeping my way toward remission now, but I can feel myself improving the way I did the first time.In context ↗ | Pacing and the energy envelope |
| December 2024 | no progress over the year since reinfection; specialists no longer affordableIt’s been over a year since and I have made no progress since, unfortunately.In context ↗ | |
| October 2025 | still ill, with bed-bound days and good daysNot judging my body for my bed-bound days and being grateful for the good days without wishing they could happen every day.In context ↗ |
Adverse events
- Progestin-only birth control (mini pill, implant or shot)“I’ve tried the pill twice— one had estrogen and progesterone and the other was a progesterone only pill and both times I got horrible panic attacks that would roll right into each other.” In context ↗ Mood or psychiatric effects
- “It made everything worse, unfortunately.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Being so careful with my progress, monitoring myself so I don’t trigger PEM, resting when I don’t want to.
In context ↗ - Brain fog
I have been struggling with brain fog (among a slew of other symptoms) for three years now.
In context ↗ - POTS & dysautonomia
My vertigo is starting to ease, even though I still get some attacks of it.
In context ↗ - Sleep problems
I've found that my body is extremely temperamental if my sleep was even slightly off-kilter.
In context ↗ - Pain & fibromyalgia
my fatigue, dizziness, and joint pain still pack a wallop
In context ↗ - Headaches & migraine
chronic migraines have become a thing
In context ↗ - Breathlessness
My lungs were at half the strength they should have been in October.
In context ↗ - Muscle weakness
some bad weakness on my left side and joint pain
In context ↗ - Flu-like symptoms
bouts of feeling feverish with no fever ever since I had covid in June
In context ↗
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