Bedridden in first year of long COVID, now somewhat better with nicotine patches
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2 years
- Last post
- May 2025
In their words
- Condition: Long COVID
I’ve been dealing with long COVID for 2+ years (bed ridden the first year)
In context ↗ - At worst: Severe
bed ridden the first year
In context ↗ - Now: Somewhat better
Meds for Hyper Pots, migraines and iron infusions have helped tremendously. Still have to manage symptoms daily but it’s better than being bed ridden.
In context ↗ - Began after: COVID
I’ve been dealing with long COVID for 2+ years
Read from 7 of their posts and comments; links to the 7 this page draws on
Summary
Badger 28829 developed long COVID in about 2022 and was bedridden for the first year. Nicotine patches were a game changer, and later guanfacine, midodrine, migraine preventatives, Botox and three iron infusions for a ferritin of 7 helped tremendously. By May 2025 they were no longer bedridden but still managed symptoms daily with a low-histamine diet, Zyrtec, Pepcid and LDN.
Ask Miruvor AI
What they tried
What they credit
Also tried
Their words about each treatment
- nicotine patch protocol · Helped a lot
I’ve tried so many things and nicotine patches (short term and low dose) have helped a lot.
In context ↗ - Guanfacine · Helped
Guanfacine took care of my adrenaline dumps (tremors, vibrating, convulsive presyncope).
In context ↗ - low histamine diet · Helped
A low histamine diet has been helpful as well.
In context ↗ - Midodrine · Helped
Midodrine helps with headaches, dizziness, energy, etc.
In context ↗ - iron infusions · Helped
After 3 successful iron infusions mine is up to 167 and I am feeling a bit better.
In context ↗ - LDN · Helped
LDN also helped with body aches.
In context ↗ - Zyrtec · Not said
take Zyrtec and Pepcid 1-4 times daily(depending on symptoms)
In context ↗ - Cromolyn · Not said
I saw an allergist who prescribed Cromolyn but it was a challenge to stay compliant.
In context ↗ - preventative and abortive meds · Helped
Meds for Hyper Pots, migraines and iron infusions have helped tremendously.
In context ↗ - Botox injections · Helped
receive Botox injections every 3 months
In context ↗
Approaches: POTS medication · Diet · Other drugs and medicines · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2022 | long COVID; bedridden for the first yearbed ridden the first yearIn context ↗ | Severe | |
| 2024 | started nicotine patch protocol; called a game changerstarting the nicotine patch protocol has been a game changerIn context ↗ | Not stated | Nicotine patches |
| 2025-01 | guanfacine stopped adrenaline dumps and tremorsGuanfacine took care of my adrenaline dumps (tremors, vibrating, convulsive presyncope)In context ↗ | Not stated | Guanfacine |
| 2025-05 | hyper POTS and migraine meds plus three iron infusions; still managing symptoms dailyMeds for Hyper Pots, migraines and iron infusions have helped tremendously. Still have to manage symptoms daily but it’s better than being bed ridden.In context ↗ | Moderate | Iron infusion / ferritin repletion |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
Guanfacine was prescribed for my adrenaline dumps, as I have Hyperadrenergic POTS.
In context ↗ - Headaches & migraine
Was diagnosed with chronic migraine, put on preventative and abortive meds and receive Botox injections every 3 months.
In context ↗ - Brain fog
Much of the dizziness, brain fog, and head pressure (I call it cotton candy head) was a result of daily migraines.
In context ↗ - Pain & fibromyalgia
LDN also helped with body aches.
In context ↗
Ask Miruvor AI
Similar stories
-
Severe ME/CFS needing a wheelchair, now moderate and 95% housebound
Owl 19277 got COVID in March 2020 and developed long COVID/ME/CFS, becoming severe and needing a wheelchair, with PEM, MCAS and dysautonomia (neurally-mediated hypotension). She later improved from severe to moderate and got rid of her wheelchair, though she…
-
Bedbound and housebound with long COVID for months, now much better with pacing and time
A long COVID patient who was bedbound and housebound for months and kept worsening for about eight months before a slow, gradual improvement. They credited low-dose naltrexone, hormones, ferritin and mitochondrial supplements, pacing and time for gains of…
-
Not enough detail to draw a path
Bedbound then housebound with ME/CFS, now much better, credits low-dose naltrexone
Swan 81993 developed long COVID a few years ago, mostly functional until a reinfection before diagnosis left them bedbound for months and housebound for over a year, unable to work. Antihistamines, a low histamine diet and mast cell stabilisers eased their…
-
Long COVID, unable to walk or drive for months, now much better after LDN and cromolyn
A long hauler since December 2023 in Wisconsin, they could not walk or drive for months and reported dysautonomia/POTS and MCAS. Low-dose naltrexone, cromolyn, a low-histamine diet, midodrine, mestinon and creatine were credited with slow gains, and at ten…