Long COVID with PEM and fatigue, now nearly back to normal after HBOT
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 10 months
- Last post
- Aug 2022
In their words
- Condition: Long COVID
Originally got covid in August of 21. Had long covid problems for the last 10 months.
In context ↗ - At worst: Moderate
CFS, POTS, type severe symptoms. PEM, fatigue, insomnia, muscle pain, etc. for 9 months.
In context ↗ - Now: Near normal
10 Months - 95% Recovered ... Feeling like myself again finally. I'm able to exercise again, work all day, etc.
In context ↗ - Began after: COVID
Originally got covid in August of 21.
- Says they never had: Mast cell (MCAS) & allergies
No i don't have allergies.
Read from 29 of their posts and comments; links to the 9 this page draws on
Summary
They caught COVID in August 2021 and spent about ten months with PEM, fatigue, POTS-like symptoms, palpitations, insomnia, tingling, anxiety and changed smell and taste. Sublingual B12, antihistamines, a pure EPA supplement, a methylation supplement stack and exercise each coincided with improvement, though they were unsure what helped. By ten months they were 95% recovered, able to exercise and work all day, and later credited HBOT.
Ask Miruvor AI
What they tried
What they credit
Also tried
Their words about each treatment
- zyrtec · Helped a lot
I take zyrtec. takes away muscle soreness, fatigue, brain fog, insomnia, tingling in my hands, irritability, POTS symptoms, arrhythmias, chest pain, weird zapping pains.
In context ↗ - Magnesium · Helped
Magnesium helps me.
In context ↗ - various supplements · No change
Tried every supplement within a 100 mile radius, nothing really helped.
In context ↗ - sublingual B12 · Helped a lot
a week later my fatigue is completely gone 100%
In context ↗ - benadryl · Helped a lot
When i take big doses of benadryl 100% of my symptoms resolve temporarily.
In context ↗ - fasting · Helped a lot
When i fast, my symptoms disappear.
In context ↗ - magnesium threonate, methyl b12, methyl b9, p5p b6 · Not said
I also started a supplement regimen at about the same time as the EPA supp
In context ↗ - pure EPA supplement (Vascepa) · Not said
Not sure if that helped but it seemed to coincide with my recovery.
In context ↗ - exercise / sports team · Helped
the PEM was bad at first but seems to be a bit less after each flare ... i think exercise helped me recover
In context ↗ - HBOT · Helped
HBOT helped me, im going on 12 months now
In context ↗
Approaches: H1 antihistamines · Hyperbaric & oxygen · Exercise and activity · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| August 2021 | caught COVID-19, then long COVID symptomsOriginally got covid in August of 21. Had long covid problems for the last 10 months.In context ↗ | Moderate | |
| 2021-10-19 | relapse after more than mild exercisemine is triggered by anything more than mild exercise. the relapse is delayed by about a day or 2.In context ↗ | Moderate | |
| 2022-04-22 | fatigue and muscle pain gone after sublingual B12; played volleyball with no PEMSo i bought some sublingual B12, a week later my fatigue is completely gone 100%.In context ↗ | Near normal | |
| 2022-06-08 | 95% recovered, back to exercise and full work daysFeeling like myself again finally. I'm able to exercise again, work all day, etc.In context ↗ | Near normal | |
| 2022-08-06 | about 12 months in, HBOT helpingHBOT helped me, im going on 12 months nowIn context ↗ | Near normal | Hyperbaric oxygen (HBOT) |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
PEM, fatigue, insomnia, muscle pain, etc. for 9 months
In context ↗ - Brain fog
takes away muscle soreness, fatigue, brain fog, insomnia
In context ↗ - POTS & dysautonomia
POTS, CFS, PEM type symptoms, SOB
In context ↗ - Sleep problems
PEM, fatigue, insomnia, muscle pain, etc.
In context ↗ - Pain & fibromyalgia
body aches, all of which got worse after exercise
In context ↗ - Heart symptoms & palpitations
Heart pounding has mostly resolved.
In context ↗ - Neuropathy & tingling
burning sensation in hands and feet, tingling / numbness of hands
In context ↗ - Anxiety & low mood
Sublingual b12 completely took away my anxiety and heart palpitations that i had for 9 months
In context ↗ - Loss of smell or taste
changed smell and taste ... After 10 months it's basically back to normal.
- Temperature regulation
fast heart beat, palpitations, chills
In context ↗
Ask Miruvor AI
Similar stories
-
Housebound with long COVID, now much better with ketogenic diet and magnesium
Horizon 16724, a powerlifter in northern Europe, fell ill with long COVID around 2020 and was housebound for a couple of months in 2021/2022 with brain fog, insomnia and gut dysbiosis. A low-calorie bean diet with zone-2 cardio gave a brief full remission in…
-
Long COVID nerve pain and dysautonomia, now much better with antihistamines and time
Symptoms began in June 2021, with nerve pain, tingling, dysautonomia and vascular symptoms that were worst for the first 9-12 months and left him roughly 25% below his old baseline. Antihistamines, famotidine, aspirin, magnesium and time brought slow…
-
Long COVID with panic attacks and nerve pain, now recovered after rest and time
A mail carrier who caught COVID in January 2022 and spent about a year with long COVID: panic attacks, suicidal ideation, anxiety, a racing heart and nerve pain, worst in spring 2022. They credit time, rest, sunlight, antihistamines as needed and staying…
-
Not enough detail to draw a path
Long COVID knocked them down for 8-9 months, close to normal with sleep routine and sauna
A runner and lifter who caught COVID twice; each round knocked them down for 8-9 months, with roughly 10 and 6 months to feel mostly normal again. They credit a strict sleep routine (magnesium, 5HTP, half a Unisom), daily psyllium husk, niacin flushes, B…